1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
A disease with two faces? Re-naming ME/CFS
Persuasion Smith covers the bases on the misleading and disreputable name for our disease we've all been saddled with ...
Discuss the article on the Forums.

Can anyone recommend an endocrinologist in the UK?

Discussion in 'ME/CFS Doctors' started by maryb, Oct 7, 2012.

  1. maryb

    maryb iherb code TAK122

    Messages:
    2,925
    Likes:
    2,062
    UK
    I would dearly love to go to see someone like Dr Mirza in the US but being realistic I don't think I am up to the flight. Given my blood test results think an endocrinologist would be a good place to start.
    In addition to the thyroid??? I have symptoms of low blood sugar, shaky, sweating after a litte exertion which is eased by a sugary drink or snack, I have a no sugar diet so this really defeats what I'm trying to do. (But my GP says no problem (not to her that is:()
    Soooo can anyone recommend a good endocrinologist who has some understanding of ME or is that a big ask?:( Distance no problem.
     
  2. Tammy

    Tammy Senior Member

    Messages:
    371
    Likes:
    307
    New Mexico
    Maryb.............did you have abnormal thyroid results? If you have symptoms of low blood sugar..........have you tried any of the herbs that can help regulate blood sugar?
    I don't think you have to necessarily eat a sugary snack to help raise the level.
     
  3. Tammy

    Tammy Senior Member

    Messages:
    371
    Likes:
    307
    New Mexico
    when I had symptoms of low blood sugar.........chromium picolonate really helped me. My Dr. actually tested my chromium levels and they were extremely low.
     
  4. maryb

    maryb iherb code TAK122

    Messages:
    2,925
    Likes:
    2,062
    UK
    Thanks Tammy - yes I have had abnormal thyroid results - been prescribed thyroxine on a number of occasions but always get palpitations, never been prescribed it by an endocrinologist though who I would assume might figure out why I get that response, also the blood sugar thing just comes and goes I'd like to know why, is it an ME thing or something else. BTW - Which herbs regulate blood sugar? I also have massive sensitivities to stuff........... you know the usual:(
     
  5. maryb

    maryb iherb code TAK122

    Messages:
    2,925
    Likes:
    2,062
    UK
    Tammy - if a doctor in the UK suggested testing my chromium levels I think I'd faint:lol:
    one can dream
     
  6. ukxmrv

    ukxmrv Senior Member

    Messages:
    3,535
    Likes:
    2,095
    London
    Mary I've never been lucky enough to see an Endo in the UK who has knowledge of ME. The few I have seen were purely interested in ruling out Addison's disease and had no interest or knowledge of ME and CFS. I even took in info for them (published papers) and they had not even a passing interest.

    The symptoms you mention could be blood pressure related or PEM.

    Have you considered Dr Peatfield for thryroid. I've not seen him but some ME and CFS patients do

    There's a recording of a lecture he gave to the Liverpool here (scroll down to the link which is under the heading "forthcoming meetings")

    http://liverpoolmesupportgroup.org/?page_id=7
     
  7. Tammy

    Tammy Senior Member

    Messages:
    371
    Likes:
    307
    New Mexico
    Mary ...........the herb that I am familiar with that balances sugar levels is Gymnema. I am not really keen on how endo's approach thyroid problems.............for me personally.......i would seek an alternative Dr...........especially if you are getting palpitations with the prescription thyroid meds.
     
  8. Tammy

    Tammy Senior Member

    Messages:
    371
    Likes:
    307
    New Mexico
    Mary.........I was fortunate to see a CFS specialist years ago who ordered the test along with many other tests that quite frankly most Dr's would not even be familiar with. He was great. It's weird but one of the reasons he ordered the test (chromium) is because i told him my scalp itched all the time. He said.......oh we need to test your chromium levels. How he concluded that from an itchy scalp.....I don't know! After starting the chromium picolonate.....my shakiness and sweating went away.....along with the itchy scalp!
     
  9. maryb

    maryb iherb code TAK122

    Messages:
    2,925
    Likes:
    2,062
    UK
    Thanks ukxmrv - yes you're right it could be BP or PEM , its so hard to try to differentiate on your own though isn't it? like every other symptom we have, the only clue I have is that it eases after eating something sweet and sitting down for 1/2hour. Just recovering from what I think is PEM - that floored me for 2 days, that comes on as if I have flu-shivering, light headed,dizzy,puts me in bed, doing too much over 2 day previous was what caused it.
    I'll have another look at dr peat-field thanks.
    Tammy - I just knew it wouldn't be in the UK:) - funnily enough I have an itchy scalp as well, why oh why can't we have docs like that over here, so should I order some and add to my bulging cupboard of supplements untolerated:( thats the problem) or should I start a mult vitamin/mineral that has chromium picolonate in? decisions decisions.
    Honestly as far as alternative doctors go I wouldn't know where to start here.
     
  10. EnduringAngel

    EnduringAngel

    Messages:
    82
    Likes:
    38
    "Hampshire, UK"
    you need to get your adrenals supported before beginning thyroid meds ideally.
    If you find you have adrenal problems via testing (dr myhill can help with this) then low dose hydrocortisone can really help.
     

See more popular forum discussions.

Share This Page