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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Can a bone marrow test help?

Mij

Senior Member
Messages
2,353
@Gingergrrl I don't know if you have M.E but I did not experience fatigue (not the same as I've felt in the last several years ie; inability to produce energy on demand), PEM or brain fog/cognitive impairment either during the first 10yrs of illness.

I don't experience your most debilitating symptoms on a daily basis but I have on and off over the years.
 

Gingergrrl

Senior Member
Messages
16,171
@Mij, Thank you and I do not know either! My ME/CFS doctor who I deeply respect feels that I do have ME/CFS although at times even he is not certain since no one is truly certain what this disease is (or all of the many subgroups.) I know it really does not even matter and if I could get a fraction of improvement, I do not need a label. I just sometimes feel having the most accurate label might help my treatment but then again, it might not.
 

Mij

Senior Member
Messages
2,353
@Gingergrrl exactly.

I think I've discussed this with you before, the M.E specialist who worked with Dr.B Hyde years ago did not feel I had M.E based on his experience but gave me an "atypical M.E" diagnosis and told me I had a high probability of recovery. Unfortunately that did not happen.
 
Messages
92
After looking at the MAST criteria--and the description on Wikipedia--I think I only have the most generic symptoms: fatigue, occasional night sweats, lightheadedness, brain fog, and a couple of others. It seems harder to dx than ME! I'll tentatively ask the haematologist.