1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
A disease with two faces? Re-naming ME/CFS
Persuasion Smith covers the bases on the misleading and disreputable name for our disease we've all been saddled with ...
Discuss the article on the Forums.

Campaign for Better Health Care

Discussion in 'Other Health News and Research' started by shrewsbury, Apr 8, 2010.

  1. shrewsbury

    shrewsbury member

    Messages:
    1,540
    Likes:
    55
    kelly posted this to CO-CURE today

    [if: I know nothing about this organization, but thought it might be of interest]

    An organization called the National Partnership is launching a major new
    initiative, the Campaign for Better Care

    <http://www.nationalpartnership.org/site/R?i=SESavJKG8YCWmcH6yPTYHw..>,

    to ensure that all Americans realize the promise of health reform.

    The *Campaign for Better Care * led by the National Partnership, Community
    Catalyst and the National Health Law Program, with funding from The Atlantic
    Philanthropies now begins the critical work of convincing
    policymakers to implement reform in ways that give people the comprehensive,
    coordinated health care they need especially older adults and individuals
    with multiple chronic conditions, and those who are sickest and most
    vulnerable.


    The partnership is putting together a slideshow of personal stories where
    patients can share their personal experiences. The campaign is also on
    Facebook.

    www.campaignbettercare.org

    ---
     
  2. Tammie

    Tammie Senior Member

    Messages:
    760
    Likes:
    10
    Woodridge, IL
    it looks like this once again completely leaves out people who are not seniors and have chronic health issues....even though it says in a couple of places "individuals with multiple chronic conditions" when you actually try to tell your story, they only want to hear from people who are taking care of seniors with chronic conditions or from the seniors themselves....and pretty much all the info on the site is geared soley towards senriors

    not that I am at all opposed to making things better for seniros, but there IS more help available for them and they generally ARE living on higher incomes than younger people with chronic health conditions (& since the younger people will be likley living longer, they have to try to make do on next to nothing for a lot longer time period, whihc compounds the situation).....so typical - so sick of this cr@p about forgetting younger people with chronic conditions who are comepltey unable to work

    not to mention that the site itself is pretty vague about what they actually want to do....they give goals that sound admirable, but no specifics about how they really would like things to look or how they would expect to achieve them.....they do mentions htings like evidence based and best care, though & as most PWCs know, the supposed evidence based care is NOT good care at all.....sounds liek this types of plan would just result in us being stuck with GET/CBT types of treaments
     

See more popular forum discussions.

Share This Page