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Calling all Aussies! Anyone tried Dr Richard Schloeffel?

Discussion in 'ME/CFS Doctors' started by CFSNZ, Nov 22, 2012.

  1. CFSNZ

    CFSNZ

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    I came across this article recently:

    http://www.mindfood.com/at-health-mind-chronic-fatigue-syndrome.seo

    It's an interview with a holistic practitioner, Dr Schloeffel, about CFS. A few things about the article struck me:
    • Dr Schloeffel says 50% of his patients fully recover, and 20% significantly improve. He does not specify what time frame this is over, or whether any of these patients are severe / complex cases. However, this seemed like a good prognosis from what I understand about CFS
    • He doesn't consider CFS to be a final diagnosis, and makes an effort to ascertain what 'type of CFS' a patient has. I think this is logical idea given that CFS is often a diagnosis by exception and different patients have reported different triggers (e.g. viral, chemical exposure, severe stress). Therefore, it seems plausible that two CFS patients may have a completely different illness, but get lumped together in this diagnosis by exclusion. Dr Schloeffel says he was trained as a 'diagnostic physician', so one would hope he is not too quick to throw everyone in the CFS basket!
    • He appears strongly against the view that CFS is a psychological illness. Great quote copied below
    So I suppose I would like to ask two things:
    • If you have seen Dr Schloeffel, could you please share your experience? I live in New Zealand, and would be very interested to know whether it may be worth a trip to Australia for a consultation
    • If you haven't seen Dr Schloeffel, what is your impression? Is this worth further investigation or am I being sucked in (...again)
    A quote from the article:
    "Anyone who tells someone with CFS that it’s in their mind, has made a huge diagnostic error – it’s a criminal, negligent offense against the patient."
    SanDiego#1 likes this.
  2. merylg

    merylg Senior Member

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    I have sent you a PM/"Conversation" ...
    CFSNZ likes this.
  3. SanDiego#1

    SanDiego#1 SanDiego#1

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  4. SanDiego#1

    SanDiego#1 SanDiego#1

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    Sounds great in theory. Hope he is legitimate. However. Even with Cheney-We are being lumped together.
    Very few variables in treatment. Even if you get the right tests done-some will not interpret?????
    Let me know any info you find out. May be worth the trip!!!

    Thanks,

    San Diego
  5. CFSNZ

    CFSNZ

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    Hi San Diego,

    Thanks for your comment. I heard that Dr S. may have stopped taking new patients for a while, since he's too busy. Also I think he specialises in under-25's, so that may rule a few people out!

    I will let you know if I do a consultation with him, but that may be a little way away!
  6. SanDiego#1

    SanDiego#1 SanDiego#1

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    Well the under 25 takes me out. Maybe that is so they can make sure they have a fighting chance and can treat them longer???Ha!

    Let me know what you find out.

    Take care of yourself.

    San Diego
  7. ukxmrv

    ukxmrv Senior Member

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    If he specialises in that group it makes me suspicious that he is after the easy picking of the post-glandular fever group.
    heapsreal likes this.
  8. SanDiego#1

    SanDiego#1 SanDiego#1

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    I am suspicious of all of them now.

    San Diego
  9. Jane Robson

    Jane Robson

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    We have been travelling across Australia on a regular basis to see Dr Schloeffel for my daugher and he has been wonderful, thorough and never gives up. The last year has shown huge success and improvements and I would highly recommend him. He is incredibly hard to get in to see but once you get onto his books then he will give you the best available treatment and search for diagnosis thoroughly. It costs us a lot as a family to get to Sydney but it is worth it.
    CFSNZ likes this.
  10. CFSNZ

    CFSNZ

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    Thanks Jane! I appreciate your testimonial.

    I don't suppose you could tell me a bit about the specific treatments he uses for your daughter?

    I'm based in New Zealand and have tried a lot of things (and spent a lot of money!). I would like to try and see Dr Schloeffel, but my concern is spending more money and time travelling, only to end up with no new ideas.

    Many thanks. I hope your daughter is continuing to do well
    aimossy likes this.
  11. Recoverygirl2828

    Recoverygirl2828

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    I see Dr Richard Schloeffel, He is one extremely intelligent man!
    I have been diagnosed with CFS, POTS (Postural Orthostatic Tachycardia Syndrome), fibromyalgia, MTHFR defects, leaky gut syndrome etc etc Prior to seeing Dr Schloeffel.
    Dr Schloeffel looks at these conditions differently, he looks at it as a symptom to something else rather than a final diagnosis.
    When i saw him he did more blood work to find what else i have going on in my system. He uncovered I have Multiple Chronic bacterial infections/parasitic infections/virus' that can in fact cause CFS, POTS etc
    The List of Chronic infection/parasite/virus' were:
    Mycoplasma Pneumoniae
    Chlamydophilia Pneumoniae
    Babesia Duncani
    HGE
    Epstein barr virus
    Brucelliosis
    Borrelia (also know as Lyme disease)
    Helicobacter pylori

    After seeing my results he told me i have chronic neurological Lyme disease/coinfections and he knew exactly how to treat, We started Intravenous Antibiotics and within 4 weeks i started to see significant improvement.
    Im still on IV antibiotics as Ive just completed my 8th week but so far so good.
    heapsreal and CFSNZ like this.
  12. ukxmrv

    ukxmrv Senior Member

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    How did he do the tests for the infections Recoverygirl. Was it through blood tests to a lab or did he use something like dark field microscopy?

    Glad to hear of your improvement.
  13. CFSNZ

    CFSNZ

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    Very helpful reply, thanks so much! I appreciate the detail you provided on the infections, parasites and viruses that the testing uncovered.

    I hope you don't mind if I bother you with a few follow-up questions? I would like to undergo some sophisticated bacterial and parasitic infection myself, so I'd be interested to hear a bit more.
    • Did you undergo many other tests? If so, what did these focus on?
    • Did you have to use any special diagnostic testing facilities (e.g. PCR lab)? Or were these done through standard blood testing?
    • How much did the testing cost?
    • It's great to hear you're improving. May I ask how you would you rate your energy level before and after Dr Schloeffel's treatments (e.g. 2/10 before, 4/10 after)?
    • Was it difficult to get an initial consultation with Dr Schloeffel? I hear he's very popular!
    • How was your leaky gut diagnosed (prior to Dr Schloeffel)?
    Once again, thanks for your very helpful reply. On an unrelated note, welcome to the forum!
  14. knackers323

    knackers323 Senior Member

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    I tried to get in to see this guy and was told he doesnt see people over 25 so i was told to write a letter to him outlining why I wanted to see him and why I thought he could help. Basically made to beg. I was then told, no he wouldn't see me. I guess at 26 I wasn't worth trying to help.
  15. Snow Leopard

    Snow Leopard Senior Member

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    Seriously? That is a real shame. :(
  16. knackers323

    knackers323 Senior Member

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    A shame! ? Ha yeah. I guess that's one word for it.

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