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Call to Action: Include Ampligen in 21st century cures legislation

Discussion in 'Action Alerts and Advocacy' started by SpecialK82, Sep 27, 2014.

  1. SpecialK82

    SpecialK82 Ohio, USA

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    Ohio, USA
    Need to send emails immediately, please share as widely as possible.

    - See article posted on ProHealth by Billie Moore:

    "Congress is working on something that has promise of having a good effect on getting Ampligen approved - legislation through the 21st Century Cures initiative"

    http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=19246
     
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  2. Hate ME/CFS

    Hate ME/CFS

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    Sacramento, California
    Even if Congress did approve the use of Ampligen, i'm not sure that I would trust the FDA when it comes to CFIDS/ME. FDA approved drugs kill 106,000 Americans every year.
     
    *GG* likes this.
  3. barbc56

    barbc56 Senior Member

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    The figures of the number of drugs killing patients is misleading for many reasons.This article, Death By Medicine, explains this better than I can.

    http://www.sciencebasedmedicine.org/death-by-medicine/

    No the system is not perfect. The FDA is not perfect. But I don't know if there is anything out there that is better.

    This being said, patients need to be informed, which is often easier said than done.

    But back to Ampligen approval.:)

    Barb
     
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  4. *GG*

    *GG* Senior Member

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    Concord, NH
    So what is a non misleading number?

    GG
     
  5. Hate ME/CFS

    Hate ME/CFS

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    Barb,
    I wasn't trying to second guess your suggestion for patients to prod Congress to help get Ampligen approved. I just read an article about Ampligen in the National CFIDS Association's newsletter, and they mentioned the FDA quote.
     
  6. barbc56

    barbc56 Senior Member

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    I think you have me confused me with the OP @SpecialK82

    I'm also confused. Did I miss a quotation by the FDA? I'll go back and reread the article.

    Is the newsletter available on the CFIDS webpage?

    Barb
     
  7. Hate ME/CFS

    Hate ME/CFS

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    No, I don't think it is available on the CFIDS webpage. There is another CFIDS group called National CFIDS ASSOC or NCF for short, and that's where I got it from. It might be available to Yahoo or Google it.
     

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