How we can hijack the media, in four easy lessons
Love it, hate it, good story, bad story... the media are going to keep reporting on ME/CFS no matter what. But isn’t it time that we saw that coverage as an opportunity?
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Calendar of ME/CFS Events

Discussion in 'Upcoming ME/CFS Events' started by Sasha, May 7, 2013.

  1. Sasha

    Sasha Fine, thank you

    We can all contribute items to this calendar! Find out how here.

    Help me maintain the calendar in just a few minutes a week (or this could be a short-lived enterprise!). Find out about how here.

    ***** The Calendar*****


    06-23 October
    Vote for Canadian National ME/FM Action Network in Aviva Community Fund contest.
    Register (only e-mail required):

    08 October, 4:00 pm EDT
    CDC Patient-Centered Outreach and Communication Activity (PCOCA) Conference Call for CFS
    Call Number: 800-593-9959; Participant Code: 8266520

    13-14 October
    UK CFS/ME Researach Collaborative Conference, Novotel, Newcastle-upon-Tyne
    Associate Members' and researcher session: 13 October 14.00 - 19.30

    15 October, 6-7 pm BST/1-2 pm EST/10-11 am PST
    Solve ME/CFS Initiative Webinar, Alan Light, PhD, Research Professor of Anesthesiology, University of Utah

    01 December
    OMF: Giving Tuesday - "To ignite excitement, we have a very generous donor that has offered to match three times on the dollar up to $25,000 for all donations received on Giving Tuesday, Dec 1st!"

    17 December, 6-7 pm BST/1-2 pm EST/10-11 am PST
    Solve ME/CFS Initiative Webinar, Solve ME/CFS Initiative Year-End Research Review
    catly, Bob, Sidereal and 2 others like this.
  2. Sasha

    Sasha Fine, thank you

    How to notify us about an event
    We need everyone’s help in notifying us about events. We’d like to hear about ME/CFS events in any country. We’re interested in the following kind of thing:

    • Conferences
    • Meetings
    • Online charity voting contests
    • Rallies and demonstrations
    • Lectures
    • Webinars
    • Publication of important research
    • Deadlines for submitting testimony or evidence to committees
    To get an event on the calendar, just post on this thread with the content in the same format you see the calendar items in the first post, that is:

    Event title, City, State/Province (if applicable), Country
    Web link to information

    For example:

    31 May
    Invest in ME International ME (ME/CFS) Conference, London, UK Conference 2013/IIMEC8 Home.htm

    Once we’ve seen your post we’ll copy and paste the content into the calendar list and delete your post to keep the thread tidy.

    As you can see we just put the basic information in the calendar to keep it manageable. If you want to give more information about an event, especially if you think people might want to discuss it, please start a thread of its own for it in this forum.

    WillowJ and snowathlete like this.
  3. Sasha

    Sasha Fine, thank you

    How to help maintain the calendar
    If I’m the only one maintaining the calendar, it could well be a very short-lived project! I hope we’ll all benefit from it so I hope that a few people will volunteer to spend a few minutes a week entering material onto the calendar.

    All that’s involved will be adding any events you notice to the calendar, and keeping an eye out for new event notification posts on the thread. If you see a notification post, copy and paste the event in the appropriate place in the first post on the thread (the one that contains the calendar); and delete the post that contained the notification. You’ll be given edit access for that particular thread that will allow you to do those things.

    That’s it! If that takes more than a very few minutes a week – or even any minutes if there are several of us – I’d be amazed and if you find it’s too much for you, you can stop! No problem.

    Nice little thing to do to contribute to the community, though – please start a conversation with me via your inbox if you’re willing to help.
  4. Sasha

    Sasha Fine, thank you

    Calendar FAQs
    We need to keep this thread tidy so we can work in it easily. If you want to discuss the calendar or ask questions about it, please do that on this other thread. If there are FAQs, we’ll post them and the answers in this post.
  5. Sasha

    Sasha Fine, thank you

    Thanks to...

    My co-volunteer Little Bluestem!

    When you notify us about an event and we copy and paste it into the calendar and delete your post for tidiness, apparently it also deletes us having 'liked' your post and you vanish unacknowledged. But not any more!

    Thanks to the following people for notifying us of events to put into the calendar:

    Tom Kindlon
  6. charles shepherd

    charles shepherd Senior Member

    Sasha likes this.
  7. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

    Midwest, USA
    October bump. Be sure to vote for the Canadian National ME/FM Action Network in the Aviva Community Fund contest.
    Sasha and mango like this.

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