Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
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Calendar of ME/CFS Events

Discussion in 'Upcoming ME/CFS Events' started by Sasha, May 7, 2013.

  1. Sasha

    Sasha Fine, thank you

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    We can all contribute items to this calendar! Find out how here.

    Help me maintain the calendar in just a few minutes a week (or this could be a short-lived enterprise!). Find out about how here.

    ***** The Calendar*****

    2015

    23 February
    CDC CFS Patient-Centered Outreach and Communication Activity (PCOCA) Conference Call
    http://www.cdc.gov/cfs/meetings/index.html

    12 May
    Mothers for ME March on Washington, Washington, D.C.
    http://forums.phoenixrising.me/inde...s-march-for-me-u-s-capitol-may-12-2015.31139/

    29 May
    10th Invest in ME International ME Conference, Westminster, London, UK
    http://conf.investinme.me.uk/Documents/IIMEC10/IIMEC10 Leaflet.pdf
     
    Last edited: Feb 21, 2015
    catly, Bob, Sidereal and 2 others like this.
  2. Sasha

    Sasha Fine, thank you

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    How to notify us about an event
    We need everyone’s help in notifying us about events. We’d like to hear about ME/CFS events in any country. We’re interested in the following kind of thing:

    • Conferences
    • Meetings
    • Online charity voting contests
    • Rallies and demonstrations
    • Lectures
    • Webinars
    • Publication of important research
    • Deadlines for submitting testimony or evidence to committees
    To get an event on the calendar, just post on this thread with the content in the same format you see the calendar items in the first post, that is:

    Date
    Event title, City, State/Province (if applicable), Country
    Web link to information

    For example:

    31 May
    Invest in ME International ME (ME/CFS) Conference, London, UK
    http://www.investinme.org/IiME Conference 2013/IIMEC8 Home.htm

    Once we’ve seen your post we’ll copy and paste the content into the calendar list and delete your post to keep the thread tidy.

    As you can see we just put the basic information in the calendar to keep it manageable. If you want to give more information about an event, especially if you think people might want to discuss it, please start a thread of its own for it in this forum.

    Thanks!
     
    WillowJ and snowathlete like this.
  3. Sasha

    Sasha Fine, thank you

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    How to help maintain the calendar
    If I’m the only one maintaining the calendar, it could well be a very short-lived project! I hope we’ll all benefit from it so I hope that a few people will volunteer to spend a few minutes a week entering material onto the calendar.

    All that’s involved will be adding any events you notice to the calendar, and keeping an eye out for new event notification posts on the thread. If you see a notification post, copy and paste the event in the appropriate place in the first post on the thread (the one that contains the calendar); and delete the post that contained the notification. You’ll be given edit access for that particular thread that will allow you to do those things.

    That’s it! If that takes more than a very few minutes a week – or even any minutes if there are several of us – I’d be amazed and if you find it’s too much for you, you can stop! No problem.

    Nice little thing to do to contribute to the community, though – please start a conversation with me via your inbox if you’re willing to help.
     
  4. Sasha

    Sasha Fine, thank you

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    Calendar FAQs
    We need to keep this thread tidy so we can work in it easily. If you want to discuss the calendar or ask questions about it, please do that on this other thread. If there are FAQs, we’ll post them and the answers in this post.
     
  5. Sasha

    Sasha Fine, thank you

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    Thanks to...

    My co-volunteer Little Bluestem!

    When you notify us about an event and we copy and paste it into the calendar and delete your post for tidiness, apparently it also deletes us having 'liked' your post and you vanish unacknowledged. But not any more!

    Thanks to the following people for notifying us of events to put into the calendar:

    Tom Kindlon
    RosieBee
    usedtobeperkytina
    allyb
    Bob
    RL_sparky
     
  6. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Midwest, USA
    February bump.
     
    PurpleHaze, Sasha and Kati like this.

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