1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
In Brief: The Adrenal Glands and ME
The second in a new series of ‘In Brief’ articles, where Andrew Gladman provides a helpful insight into the science behind fairly common topics, exploring how they relate to ME/CFS. This time he discusses the adrenal glands and why they can be such a talking point ...
Discuss the article on the Forums.

Calendar of ME/CFS Events

Discussion in 'Upcoming ME/CFS Events' started by Sasha, May 7, 2013.

  1. Sasha

    Sasha Fine, thank you

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    We can all contribute items to this calendar! Find out how here.

    Help me maintain the calendar in just a few minutes a week (or this could be a short-lived enterprise!). Find out about how here.

    ***** The Calendar*****

    Now - 11 August
    Turbana Contest. US and DC persons with Facebook accounts may vote once daily for PANDORA to win $25,000.
    http://www.win25kforyourcause.com/ #25kForYourCause

    23 July
    Turbana Contest. US and DC persons with Facebook accounts may vote once every 25 minutes for 25 hours for PANDORA to win $25,000.
    This is a great chance to move PANDORA ahead in the voting! http://www.win25kforyourcause.com/ #25kForYourCause


    1 & 2 September
    UK CFS/ME Research Collaborative Annual Science Conference, Bristol, UK
    Professional Conference: http://www.eventzilla.net/web/event?eventid=2139013659
    Patient Programme: http://www.meassociation.org.uk/wp-content/uploads/cmrc-conf-patient-session-full-programme.pdf

    3 September, 9:30 - noon
    Professor Ian Lipkin will speak on infection and ME/CFS, One Bishops Square, London E1 6AD. Cost 5 pounds.
    http://www.meassociation.org.uk/201...-on-wednesday-september-3-how-to-get-tickets/

    13 September
    Advances in the Science and Treatment of ME/CFS and FM, Sheraton Hotel 150 West 500 South, Salt Lake City, Utah
    Provider Conference, 7:30 - noon: http://offerutah.org/2014conference.html
    Patient Conference, 1 - 5 pm: http://offerutah.org/2014patientconference.html

    12 May 2015
    Mothers for ME March on Washington, Washington, D.C.
    http://forums.phoenixrising.me/inde...s-march-for-me-u-s-capitol-may-12-2015.31139/
    Last edited by a moderator: Jul 9, 2014
    Sidereal, Christopher and snowathlete like this.
  2. Sasha

    Sasha Fine, thank you

    Messages:
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    How to notify us about an event
    We need everyone’s help in notifying us about events. We’d like to hear about ME/CFS events in any country. We’re interested in the following kind of thing:

    • Conferences
    • Meetings
    • Online charity voting contests
    • Rallies and demonstrations
    • Lectures
    • Webinars
    • Publication of important research
    • Deadlines for submitting testimony or evidence to committees
    To get an event on the calendar, just post on this thread with the content in the same format you see the calendar items in the first post, that is:

    Date
    Event title, City, State/Province (if applicable), Country
    Web link to information

    For example:

    31 May
    Invest in ME International ME (ME/CFS) Conference, London, UK
    http://www.investinme.org/IiME Conference 2013/IIMEC8 Home.htm

    Once we’ve seen your post we’ll copy and paste the content into the calendar list and delete your post to keep the thread tidy.

    As you can see we just put the basic information in the calendar to keep it manageable. If you want to give more information about an event, especially if you think people might want to discuss it, please start a thread of its own for it in this forum.

    Thanks!
    WillowJ and snowathlete like this.
  3. Sasha

    Sasha Fine, thank you

    Messages:
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    How to help maintain the calendar
    If I’m the only one maintaining the calendar, it could well be a very short-lived project! I hope we’ll all benefit from it so I hope that a few people will volunteer to spend a few minutes a week entering material onto the calendar.

    All that’s involved will be adding any events you notice to the calendar, and keeping an eye out for new event notification posts on the thread. If you see a notification post, copy and paste the event in the appropriate place in the first post on the thread (the one that contains the calendar); and delete the post that contained the notification. You’ll be given edit access for that particular thread that will allow you to do those things.

    That’s it! If that takes more than a very few minutes a week – or even any minutes if there are several of us – I’d be amazed and if you find it’s too much for you, you can stop! No problem.

    Nice little thing to do to contribute to the community, though – please start a conversation with me via your inbox if you’re willing to help.
  4. Sasha

    Sasha Fine, thank you

    Messages:
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    UK
    Calendar FAQs
    We need to keep this thread tidy so we can work in it easily. If you want to discuss the calendar or ask questions about it, please do that on this other thread. If there are FAQs, we’ll post them and the answers in this post.
  5. Sasha

    Sasha Fine, thank you

    Messages:
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    Thanks to...

    My co-volunteer Little Bluestem!

    When you notify us about an event and we copy and paste it into the calendar and delete your post for tidiness, apparently it also deletes us having 'liked' your post and you vanish unacknowledged. But not any more!

    Thanks to the following people for notifying us of events to put into the calendar:

    Tom Kindlon
    RosieBee
    usedtobeperkytina
    allyb
  6. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Midwest, USA
    Bump for today's special vote every 25 minutes for 25 hours event in the Turbana Contest.

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