Please check out my new blog post, Who Benefits? Who Benefits Enough from What CAA does to Want to Give them $1M per Year? http://forums.aboutmecfs.org/entry.php?833-Who-Benefits I find the whole anonymous donation thing very strange. My Dad was an executive director of a non-profit recently and with them and everywhere I've ever interacted with non-profits, they make the list of donors very prominent as a way of saying thank you to the donors. And they will list anonymous donors as "anonymous" on the donor list and they usually only make up a pretty small percentage of big donors. Rich people who give a lot of money to a good cause that they could have spent on themselves usually want to be recognized for doing such a good thing. In NYC, where I'm from originally, there is a whole circuit of fundraising parties where people pay thousands of dollars each to attend a party. Most donors would rather go and celebrate and be recognized for donating than to give anonymously. It's considered probably the main way to 'rise in society'. That may sound ridiculous but for a lot of people donating a lot of money and going to these parties and being on Boards of Directors of non-profits is the way to be in the world of the rich socialites. So the fact that the donors to CAA don't want to be named is very strange. What are the plausible and probable scenarios? The vast majority of patients, at least the ones who participate on ME communities on the internet, are extremely dissatisfied with CAA. The average pwME doesn't have any spare cash to donate to a charity, even if he loved it. The CAA revenues are now about $1M per year, down from much more over 20 years. Let's say that there are 1,000 pwME who donate an average of $50 per year; that's $50,000. They get some money from a bike race, say $10,000. They get some money from the state of NC, say $20,000. Add those, it's $80,000, round up to $100,000 and we still have $900,000 unaccounted for. It's unlikely that all this money comes from one eccentric donor who is extremely wealthy, is out of touch and thinks CAA is that deserving. Let's say there are four people each donating $100,000 and twenty people each donating $25,000. Are there really 24 people out there who have ME or whose relatives have ME that would donate that much to an org that is so disliked by patients? Do all twenty four of these people really want to be anonymous for doing such good deeds? That seems very unlikely to me. pwME tend to want to socialize, share and bond with each other, I think, since we are so misunderstood and treated badly by a lot of the rest of the world. And, though there are many pwME, it seems to me that the involved people tend to be a small world, since there are not a lot of doctors, scientists, philanthropists, celebrities involved. So it seems like the big donors would be out and involved with the 'community' like the Whittemores are. Or if they aren't, it would be obvious who these people are. Laura Hillenbrand is supposedly a significant donor. That's one. OK. Who else? Things seem fishy to me. How does CAA get $1M per year? Who is the satisfied customer(s) who think they are worth the price? Not patients I would think. Well who benefits from the way CAA acts? Insurers, NIH and CDC. Obviously these entities would want to be anonymous if they donated. What do people think?