Ms. McCleary has two members of her family with CFS, one of whom is extremely ill. Some of her very close friends are severely ill patients. She has watched too many of us decline over the years, and she is intimately acquainted with what CFS does to those afflicted and to their caregivers. To suggest that she is unaware of this reality, or does not care, is hyperbole. Many of the bullet points you made have been discussed in other threads, so I won't repeat the material here. One point I would like to address: The Association does not have "relations" with White, et al. Neither White nor Wessely write CAA policy, and there are no facts to back up the assertion that they do. It doesn't take guts to be on this forum. I choose to be here. Other Board members have chosen other things to work on. There is more than enough work to go around!