Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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(by Peter White) "Chronic fatigue syndrome service: St Bartholomew’s (Barts) Hospital, London"

Discussion in 'General ME/CFS News' started by Dolphin, Dec 26, 2012.

  1. Esther12

    Esther12 Senior Member

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    I thought this was semi-related to this thread and not worth starting a new one for.

    maxwhd posted a link to a White article I was sure we'd discussed before, saying much the same as the above, but I couldn't find it on here so thought I'd risk a repost: http://t.co/IqQYjngWfE

    The thing I thought was most interesting about it was the description of the interventions. There's no mention of APT's 70% rule, and really, it makes APT's 'presumption' sound necessarily true - unless you think that CFS patient's energy levels are infinite. From that description, APT would seem to be able to include CBT and GET.

     
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  2. Dolphin

    Dolphin Senior Member

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    The thing is that it's not that individually designed with restricted mutual planning possible according to the manual. It's about breaking the link between symptoms and activity levels. So if one increases activity levels, and experiences increased activity, one is supposed to maintain such activity levels for a week or two.
     
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  3. Esther12

    Esther12 Senior Member

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    From his descriptions, it would be hard to know whether one was doing GET or APT.
     
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  4. Sean

    Sean Senior Member

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    Quietly morphing GET into some form of pacing, while still calling it GET, began some time back, I suspect.
     

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