Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Buzzfeed: 19 Facts About The Disease That Makes You Tired All The Time

Discussion in 'General ME/CFS News' started by mango, Oct 30, 2016.

  1. mango

    mango Senior Member

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    https://www.buzzfeed.com/carolinekee/19-facts-about-chronic-fatigue-syndrome
     
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  2. mango

    mango Senior Member

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    https://www.facebook.com/MEActNet/posts/1818045241811207
     
  3. Cheesus

    Cheesus Senior Member

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    That's really not what it feels like. It is not analogous to sleep.
     
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  4. ash0787

    ash0787 Senior Member

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    close enough but not quite accurate, I rarely feel sleepy I often feel on edge but exhausted,
    there are not any effective treatments that are deployed to hospitals.
     
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  5. dreampop

    dreampop Senior Member

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    Eh, you have to cut them some slack. They are saying it feels terrible. Its a hard fatigue sensation to actually describe in a sentence, I still have trouble after 10 years.
     
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  6. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    This is so wrong:
    This is irresponsible journalism. There is no evidence to support this.
     
  7. Chrisb

    Chrisb Senior Member

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    I beg to disagree. There is a great deal of evidence that the "experts" say that people will notice some level of improvement after specialized treatment.

    The fact that the "experts" are wrong and may not ,in fact, be experts is a different matter completely.
     
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  8. worldbackwards

    worldbackwards A unique snowflake

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    I note that this is the Mayo clinic, who took a complete pasting in David Tuller' s recent piece.
     
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  9. Lily Valley

    Lily Valley

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    From the article:
    "There’s another theory that CFS is caused by central sensitization, Fleming says, which basically means someone is hypersensitive to stimuli like noise, light, heat, cold, or electricity. So their brain sends abnormal pain signals to the central nervous system from normal stimuli that doesn’t bother other people. It could explain why CFS patients feel so much pain, get frequent headaches, or feel so exhausted from exercise, Fleming says."

    Kevin C Fleming, from the Mayo Clinic, about central sensitization, or, somatoform disorder:

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4422459/
     
  10. IreneF

    IreneF Senior Member

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    Oh right. That would explain my defective natural killer cells.
     
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