I know this is an old thread but did anyone figure out what is causing this excruciating burning in the head and spine?
In my case it comes with the flares, I am going to get tested for lupus. My MRI and MRA of the head came back clear except for chronic sinusitis. This flare started in October last year and I gradually got worse and worse, burning in the spine and head and also random burning all over my body are some of the other symptoms, pins and needles, bad anxiety, depression, feeling spaced out, cognitive issues etc etc .... this is my second worst flare in the last 2 years so I am going to have to rule out lupus which I've heard can cause this symptoms. I am house bound mostly now, bed bound a lot of the day .. I also have constant dizziness and balance issues...
I also have joint pain all over and cracking in my joints ..
Last time the rheumatologist I have seen told me I have fibromyalgia .. I am still worrying about having lupus, have days when it's hard to walk.
Did anyone get tested for lupus?
I have a lyme diagnosis (negative test), my llmd diagnosed based on my clinical symptoms, so I am still wondering if this is not lupus.
Al