1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Building or Borrowing a Media Contact List

Discussion in 'Action Alerts and Advocacy' started by justinreilly, Oct 21, 2013.

  1. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    NYC (& RI)
    I think it's essential that we get together a contact list of media, eg. newspapers, video programs, podcasts, magazines, tweeters and blogs that are either devoted to or have sections on health or government/policy/politics.

    For example, when I was involved in the Sierra Club we used an encyclopedic list of all print and video media that was prepared by EMILY'S List. That one wouldn't be the best one for us since it included every tiny newspaper. But, I bet some organization devoted to some other disease maintains the type of list for which we are looking.

    Does anyone have any contacts at any org like this and is there anyone who, if that doesn't pan out, would help me contact various groups?

    This list would be used to contact media to draw their attention to news stories on ME such as the current opposition to the IOM Contract.
    helen1, alex3619 and Delia like this.
  2. Delia

    Delia Senior Member

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    Iowa
    Let me check with my contact

    I moved over to the Facebook page created by others to fight the IOM. Link in my signature...

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