Medfeb, you have done what many have not done; your homework. Good job! As you have seen, there is a 20+ year history of advocacy that has failed, and to see patients today spending so much effort on writing letters and trying to reason with the CDC is heartbreaking. Really interesting for today is where the movement was 12 years ago, meeting with the CDC after they stole our research funds: http://www.co-cure.org/audits1.htm . I know this thread is old, but I hope people will take a look at it and let it completely change their thinking to devise new actions that will have consequences to the people at CDC. Medfeb, I believe you have the smarts and experience that the movement so desperately needs to look at history and change to completely new methods of advocacy. You can't imagine how much we need you.