Phoenix Rising: The Gift That Keeps on Giving All Year Long
This holiday season Jody Smith turns her eyes to the people of Phoenix Rising and gives thanks for you all ...
Discuss the article on the Forums.

brother with auto immune disease

Discussion in 'General ME/CFS Discussion' started by jpcv, Apr 9, 2018.

  1. jpcv

    jpcv Senior Member

    Messages:
    300
    Likes:
    567
    SE coast, Brazil
    My brother has developed an auto imune skin disease called subcorneal pustular dermatoses, a blistering disease carachterized by IgA auto antibodies against antigens of the epidermis.
    I have ME and a high ANA titer and now he develops a auto imune condition.
    Very inetersting...
     
    Gingergrrl and pattismith like this.
  2. maybe some day

    maybe some day Senior Member

    Messages:
    389
    Likes:
    1,552
    San Francisco bay area
    Is it sucessfully treatable?
     
  3. jpcv

    jpcv Senior Member

    Messages:
    300
    Likes:
    567
    SE coast, Brazil
    Yes, mainly with Dapsone or corticosteroids.
     
  4. Dmitri

    Dmitri Senior Member

    Messages:
    136
    Likes:
    113
    NYC
    I have a moderate ANA of 1:160 and family members with autoimmune disease. This is where occam's razor suggests an autoimmune cause. Do your tests for lupus, sjogren's, scleroderma etc. come back negative?
     
    Gingergrrl likes this.
  5. jpcv

    jpcv Senior Member

    Messages:
    300
    Likes:
    567
    SE coast, Brazil
    Well, my ANA was 1:160, now it´s 1:320
    All my other tests(ENA) are negative, as well as thyroid auto antibodies
     
  6. Martial

    Martial Senior Member

    Messages:
    1,375
    Likes:
    1,218
    Ventura, CA
    Kind of off topic but do they still treat most auto immune diseases with corticosteroids? To me i would feel that would put people at risk for a lot of infections to take hold stronger.
     
  7. jpcv

    jpcv Senior Member

    Messages:
    300
    Likes:
    567
    SE coast, Brazil
    It depends on the disease, there are better drugs now.
     
  8. knackers323

    knackers323 Senior Member

    Messages:
    1,377
    Likes:
    400
    I've had fluctuating ANA levels and brother and grandmother both with autoimmune illnesses
     
    jpcv likes this.

See more popular forum discussions.

Share This Page