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British NHS categorise CFS as MUS (Psych)!

Discussion in 'Action Alerts and Advocacy' started by Research 1st, Oct 14, 2015.

  1. Research 1st

    Research 1st Severe ME, POTS & MCAS.

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    Saw this and was rather alarmed at the brazen denial of ME, via CFS, via Psych MUS..

    Note the URL, is Somatization.

    More on MUS:


    Look at the Criteria for British CFS used by psychiatrists!!!!

    Clearly the above is not a disease, but made it into the PACE trial, and is likely studied as 'ME' as part of the UK CFS/ME Research Collaborative, in which Dr Holgate (MRC) asked Wessely (Psych) to select researchers for the 'Research Collaborative'.

    Worrying times.
     
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  2. British establishment at its finest...
    why be surprised?

    Like, leading WMD specialist testifies Saddam had no biological weapons...and lo and behold he's dead two days later and it's ruled a "suicide", despite all the evidence to the contrary

    Like the Scottish ex-military SNP activist/politician, who somehow managed to shoot himself in the back of the head with a pistol and after that throw the gun 60 feet behind the car from a window open only 2 inches, oddly he had a dossier on the paedophiles in government and was going to expose them...dossier went missing..."suicide".

    Go read up on the crap the media doesn't tell you about the Lockerbie Bombing, or Thomas Hamilton's mass murder of school kids

    ie, British system LIES by routine, we're just one of the many casualty groups.
    They have "plug n' play" pundits they can trot out to bullshit over any issue westminster nuked.jpg .
    Only answer is complete eradication of the British system, it is too sick, evil and twisted to fix.
     
  3. Hip

    Hip Senior Member

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    I think you misunderstood what you read. There is no "denial of ME" on the page you quoted.

    Medically unexplained symptoms are synonymous with functional disorders.
     
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  4. Valentijn

    Valentijn WE ARE KINA

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    The page repeatedly conflates "unexplained" with "psychological".
     
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  5. msf

    msf Senior Member

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    I would like to be shocked, but unfortunately I have had first hand experience of how the NHS deals with ME.
     
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  6. msf

    msf Senior Member

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    How exactly do psychological issues cause IBS? I was under the impression that the gut is regulated by the autonomous nervous system. Or is this another of those cases where actually knowing something gets in the way of a good theory?
     
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  7. alex3619

    alex3619 Senior Member

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    i.e. the fallacious psychogenic inference. See Sykes.
     
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  8. Kina

    Kina

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    What a load of crap. You can rate the page at the end of the page. I gave it a one because there was nothing lower.
     
  9. elliepeabody

    elliepeabody

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    Just had a look and the leaflet appears to have been changed to remove CFS:
     
  10. Really needs a negative rating of:
    "Load of numpty f'ing bollocks dreamt up by a bunch inbred hamster shaggers who got their medical licences from Lucky Bags!"
    :p

    (For those unfamiliar, "Lucky bags" were bags of sweets/candies with cheap toys/treats we used to get here in Britain. It was random what you got.)

    [​IMG]
     
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  11. Hip

    Hip Senior Member

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    Can you point out where they are actually conflating "MUS" with "psychological".

    By definition, a functional disorder / MUS is one where no physical cause has so far been found for physical symptoms, and the assumption is that a functional disorder may be due to as yet undiscovered physical factors, or may be due to mental factors.

    So a functional disorder / MUS is a sort of diplomatic label that accommodates both sides — it accommodates the people who think physical factors likely cause the functional disorder, and it accommodates the people who think mental factors likely cause the functional disorder.

    So if you call a disease like ME/CFS a functional disorder, you are not saying that disease is caused by mental factors. You are saying you don't know what causes the disease, but are suggesting that both mental and physical factors could be involved. You are keeping your etiological options open, in other words.


    The above definition contrasts to the concept of somatisation. If you label some symptoms or a disease as somatisation, then you are specifically stating that those symptoms are caused by mental factors.


    Now if you are like me, and your ME/CFS or medically unexplained symptoms were triggered by a viral infection, you may find the idea that your symptoms were somehow caused by mental factors highly unlikely. Indeed, I find the whole area of somatization shoddy science, full of unsubstantiated assumptions, with very little factual evidence.

    And certainly the NHS page on MUS should have had more details about possible physical causes of MUS; there is too much emphasis on the possible mental causes.

    But in terms of definitions, a functional disorder / MUS label is not equivalent to the psychological label.
     
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  12. duncan

    duncan Senior Member

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    Not sure if that is how the real world operates, @Hip . It's arguably like what a yellow traffic light signifies: Does it mean slow down, a red light is imminent - or hurry up, a red light is imminent?

    The letter of the law might say one thing, but the interpretive practice speaks to something altogether different and more dangerous.
     
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  13. Valentijn

    Valentijn WE ARE KINA

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    In the causes, mechanisms, treatments, etc. All heavily feature psych theories.
     
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  14. Hip

    Hip Senior Member

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    Undoubtedly true.

    But presumably the NHS has to represent the current medical research status quo; it cannot take its own stance. The label functional disorder / MUS accommodates both sides of the argument. And unfortunately yes, this label does give scope for doctors and researchers to treat ME/CFS as a mentally caused disease.
     
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  15. snowathlete

    snowathlete

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    You can still get them btw. Plastic now but my daughter loves 'em.
     
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  16. Ellie_Finesse

    Ellie_Finesse Senior Member

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    I agree with what @Hip says and I also agree to a point what everyone else is saying.

    MUS is what I believe to be exactly what it says on the tin. It describes all disorders and diseases of any kind, physical or brain/mind, that is poorly understood by the medical profession. To me it doesnt necessarily mean psychosomatic!

    Yes they mentioned CFS, IBS etc, in there report, but from what I read they were not saying it was a psychosomatic disorder, it said it may play a role in these disorders. Maybe I have read it wrong, who know!

    I sometimes think, as people, and quite rightly so considering the way in which some people are treated by the system, we read too much into things and easily misinterpret its meaning.......

    You may think that I am being nieve, maybe I am. I just don't believe in taring everyone of same kind (ie in this case doctors) with the same brush. Surely not all psychiatrists/psychologists see everything unexplained as psychological! Maybe I'm missing the point here.

    My family say that my biggest fault is seeing the good in people when they feel it shouldn't be given. I say I am poorly understood and maybe some of these doctors are too, no matter what their profession!
     
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  17. Wildcat

    Wildcat

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    .
    The 'misinterpreted by patients' authors of the UK CBT/GET PACE Trial MIchael Sharpe and Peter White. And the 'misinterpreted' Per Fink and Francis Creed.


    http://admin.cambridge.org/academic/subjects/medicine/mental-health-psychiatry-and-clinical-psychology/medically-unexplained-symptoms-somatisation-and-bodily-distress-developing-better-clinical-services#


    July 2011

    Medically Unexplained Symptoms, Somatisation and Bodily Distress
    Developing Better Clinical Services

    Francis Creed, Arthur Barsky, Kari Ann Leiknes, Peter Henningsen, Per Fink, Constanze Hausteiner-Wiehle, Winfried Rief, Kurt Kroenke, Alka Gudi, Peter White, Chris Burton, Jef de Bie, Wolfgang Söllner, Kurt Fritzsche, Christian Fazekas, Michael Sharpe, Gudrun Schneider, Sing Lee, Athula Sumipathala, Emma Weisblatt, Peter Hindley, Charlotte Rask, Christina van der Feltz, Else Guthrie, Andreas Schröder, Peter White, Astrid Larisch, Richard Byng


    Medically unexplained symptoms and somatisation are the fifth most common reason for visits to doctors in the USA, and form one of the most expensive diagnostic categories in Europe. The range of disorders involved includes irritable bowel syndrome, chronic widespread pain and chronic fatigue syndrome. This book reviews the current literature, clarifies and disseminates clear information about the size and scope of the problem, and discusses current and future national and international guidelines. It also identifies barriers to progress and makes evidence-based recommendations for the management of medically unexplained symptoms and somatisation. Written and edited by leading experts in the field, this authoritative text defines international best practice and is an important resource for psychiatrists, clinical psychologists, primary care doctors and those responsible for establishing health policy.


    • Provides guidance about management of medically unexplained symptoms, filling the gap between theoretical insights and practical implementation

    • Based on an initiative of a working group of the European Association of Consultation Liaison Psychiatrists and Psychosomatics, drawing together international expert knowledge
     
    Last edited: Oct 20, 2015
  18. Ellie_Finesse

    Ellie_Finesse Senior Member

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    @Wildcat am not sure what you are trying to say, whether its in response to what I have said or if your meaning is something else. I could easily misinterpret your comment, which is basically what I was trying to say above........

    I just wonder if you wouldn't mind clarifying your meaning in a way that maybe my brain can grasp today? I hope you don't mind but what you said is just not sinking in :oops:
     
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  19. Wildcat

    Wildcat

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    My last post was to illustrate that psychiatrists Michael Sharpe and Peter White (UK CBT/GET PACE Trial), psychiatrists Per Fink (Denmark) and Francis Creed (DSMV) firmly link Medically Unexplained Symptoms with Psychosomatics. The patients are not misinterpreting what they read, or reading too much into things because of being distressed.
    .
     
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  20. Valentijn

    Valentijn WE ARE KINA

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    That's nice, but it does mean "psychosomatic" to the people using the MUPS label, and it means "psychosomatic" to other practitioners. The reason it is preferred by those people is because the suckers patients they diagnose with it won't find it offensive unless they read all the papers explaining that MUPS is now the preferred way to label patients with a psychosomatic disorder.

    It's a frequent tactic with these people. They take a positive or neutral term, and paste it on their latest nasty and twisted concept or treatment. CBT can be a very positive thing ... but the CBT used in ME bears no resemblance to the real CBT used in other biological illnesses. Yet they will say illness-denial CBT is a "real" therapy because illness-acceptance CBT is also used in those other illnesses. Similarly, some practitioners now call it "pacing" when they utilize GET, because GET has a deservedly bad reputation, and patients support pacing.

    If something is medically unexplained, everyone should be rushing to find an explanation. Not "managing" MUPS patients by restricting their usage of the medical system and giving them antidepressants, CBT, GET, and tips for lifestyle changes and stress management.
     
    Last edited: Oct 20, 2015
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