New era for ME/CFS research as top cytokine study attracts media headlines
The immune systems of patients who have recently developed ME/CFS look markedly different from those who have been ill for much longer, according to a major new study from Drs. Ian Lipkin and Mady Hornig at Columbia University. This shift in immune function hadn’t been seen before.
Discuss the article on the Forums.

British Association for Chronic Fatigue Syndrome/ME (BACME) - anyone know anything?

Discussion in 'General ME/CFS News' started by Dolphin, Nov 22, 2009.

  1. creekfeet

    creekfeet Sockfeet

    Messages:
    553
    Likes:
    2
    Eastern High Sierra
    bananaman, that's excellent. It's exciting to see local and regional associations insist that something possible big not be allowed to just slip by.
     
  2. justinreilly

    justinreilly Stop the P2P! Adopt "ME" & CCC!

    Messages:
    2,491
    Likes:
    1,179
    NYC (& RI)
  3. justinreilly

    justinreilly Stop the P2P! Adopt "ME" & CCC!

    Messages:
    2,491
    Likes:
    1,179
    NYC (& RI)
    BAPOAEMECASKBACME.com is still available!

    Our new org to fight BACME could be:

    the British Association of Patients and other Actual Experts on ME/CFIDS against the sham known as the British Association for Chronic Fatigue Syndrome/ME

    Kinda snappy, huh?

    luckily, BAPOAEMECASKBACME.com is still available.
     
  4. Dolphin

    Dolphin Senior Member

    Messages:
    7,238
    Likes:
    7,654
    :Retro smile:
    One could set up a blog for free.
     
  5. ukxmrv

    ukxmrv Senior Member

    Messages:
    3,676
    Likes:
    2,404
    London
    I think that the head of BACME (spit) is Dr Esther Crawley?

    Just to get a flavour of her ideas on XMRV (for example) there is a discussion in the WPI facebook page of a recent talk by her.

    It's under WPI on facebook, Discussions, What we are up against.

    http://www.facebook.com/topic.php?uid=154801179671&topic=12698
     
  6. Daisymay

    Daisymay Senior Member

    Messages:
    282
    Likes:
    364
    Thanks XMRV, well I suppose I shoudn't be surprised to read what Crawley said in that Dorset group talk but I kind of am, it is all so utterly blatantly awful and so shocking that an ME group would let it happen!
     
  7. Jenny

    Jenny Senior Member

    Messages:
    1,242
    Likes:
    245
    London
    QUESTIONS RAISED OVER THE TRAINING ROLE OF A NEW BODY FOR ME/CFS PROFESSIONALS

    The following statement was issued by the West Midlands ME Groups Consortium (WMMEG), which is to be sent to the All Party Parliamentary Group for ME:

    WMMEG call upon the British Association for CFS/ME (BACME) to re-write their constitution and to urgently address the issue of balance, content and appropriateness of their education and training programmes for UK healthcare professionals.


    WMMEG (West Midlands ME Groups Consortium)

    Apparently there is more on this on the ME Association's website.

    Jenny
     
  8. helsbells

    helsbells Senior Member

    Messages:
    297
    Likes:
    8
    UK
    They really just won't go away will they!! Like the terminator only the bad ones! Thanks re the elucidation re the term astroturfing though - sorry too far back now to thank the actual elucidator but I can now overuse the term with venom :D
     
  9. Dolphin

    Dolphin Senior Member

    Messages:
    7,238
    Likes:
    7,654
    Their conference is this week. If anyone hears anything, we'd all be interested (I imagine).
     
  10. Enid

    Enid Senior Member

    Messages:
    3,309
    Likes:
    844
    UK
    If that lot - BACME - is British then I am not. Big name substance lacking. On the other hand the growing support for the WMMEG by increasing numbers of countrywide local support groups spells out the difference.
     

See more popular forum discussions.

Share This Page