1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Join the National PR Campaign for ME: Power to the Patient (P2tP)
Have you had enough of all the neglect and abuse of ME/CFS patients? Gabby Klein says now is the time for a National PR Campaign for ME/CFS to impress a change. Join the Patient Revolution to restore power to ME patients ...
Discuss the article on the Forums.

British Association for Chronic Fatigue Syndrome/ME (BACME) - anyone know anything?

Discussion in 'General ME/CFS News' started by Dolphin, Nov 22, 2009.

  1. creekfeet

    creekfeet Sockfeet

    Messages:
    553
    Likes:
    2
    Eastern High Sierra
    bananaman, that's excellent. It's exciting to see local and regional associations insist that something possible big not be allowed to just slip by.
     
  2. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

    Messages:
    2,490
    Likes:
    1,175
    NYC (& RI)
  3. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

    Messages:
    2,490
    Likes:
    1,175
    NYC (& RI)
    BAPOAEMECASKBACME.com is still available!

    Our new org to fight BACME could be:

    the British Association of Patients and other Actual Experts on ME/CFIDS against the sham known as the British Association for Chronic Fatigue Syndrome/ME

    Kinda snappy, huh?

    luckily, BAPOAEMECASKBACME.com is still available.
     
  4. Dolphin

    Dolphin Senior Member

    Messages:
    6,868
    Likes:
    6,148
    :Retro smile:
    One could set up a blog for free.
     
  5. ukxmrv

    ukxmrv Senior Member

    Messages:
    3,525
    Likes:
    2,069
    London
    I think that the head of BACME (spit) is Dr Esther Crawley?

    Just to get a flavour of her ideas on XMRV (for example) there is a discussion in the WPI facebook page of a recent talk by her.

    It's under WPI on facebook, Discussions, What we are up against.

    http://www.facebook.com/topic.php?uid=154801179671&topic=12698
     
  6. Daisymay

    Daisymay Senior Member

    Messages:
    261
    Likes:
    274
    Thanks XMRV, well I suppose I shoudn't be surprised to read what Crawley said in that Dorset group talk but I kind of am, it is all so utterly blatantly awful and so shocking that an ME group would let it happen!
     
  7. Jenny

    Jenny Senior Member

    Messages:
    1,233
    Likes:
    200
    London
    QUESTIONS RAISED OVER THE TRAINING ROLE OF A NEW BODY FOR ME/CFS PROFESSIONALS

    The following statement was issued by the West Midlands ME Groups Consortium (WMMEG), which is to be sent to the All Party Parliamentary Group for ME:

    WMMEG call upon the British Association for CFS/ME (BACME) to re-write their constitution and to urgently address the issue of balance, content and appropriateness of their education and training programmes for UK healthcare professionals.


    WMMEG (West Midlands ME Groups Consortium)

    Apparently there is more on this on the ME Association's website.

    Jenny
     
  8. helsbells

    helsbells Senior Member

    Messages:
    297
    Likes:
    8
    UK
    They really just won't go away will they!! Like the terminator only the bad ones! Thanks re the elucidation re the term astroturfing though - sorry too far back now to thank the actual elucidator but I can now overuse the term with venom :D
     
  9. Dolphin

    Dolphin Senior Member

    Messages:
    6,868
    Likes:
    6,148
    Their conference is this week. If anyone hears anything, we'd all be interested (I imagine).
     
  10. Enid

    Enid Senior Member

    Messages:
    3,309
    Likes:
    841
    UK
    If that lot - BACME - is British then I am not. Big name substance lacking. On the other hand the growing support for the WMMEG by increasing numbers of countrywide local support groups spells out the difference.
     

See more popular forum discussions.

Share This Page