Surprisingly good outcomes for people who get ME/CFS after Mononucleosis (Glandular Fever)
Sometimes ME/CFS emerges after mononucleosis, or glandular fever. Simon McGrath shares results from a long-term follow-up study from Haukeland University Hospital in Norway...
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British Association for Chronic Fatigue Syndrome/ME (BACME) - anyone know anything?

Discussion in 'General ME/CFS News' started by Dolphin, Nov 22, 2009.

  1. creekfeet

    creekfeet Sockfeet

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    Eastern High Sierra
    bananaman, that's excellent. It's exciting to see local and regional associations insist that something possible big not be allowed to just slip by.
     
  2. justinreilly

    justinreilly Stop the P2P! Adopt "ME" & CCC!

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    NYC (& RI)
  3. justinreilly

    justinreilly Stop the P2P! Adopt "ME" & CCC!

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    BAPOAEMECASKBACME.com is still available!

    Our new org to fight BACME could be:

    the British Association of Patients and other Actual Experts on ME/CFIDS against the sham known as the British Association for Chronic Fatigue Syndrome/ME

    Kinda snappy, huh?

    luckily, BAPOAEMECASKBACME.com is still available.
     
  4. Dolphin

    Dolphin Senior Member

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    :Retro smile:
    One could set up a blog for free.
     
  5. ukxmrv

    ukxmrv Senior Member

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    I think that the head of BACME (spit) is Dr Esther Crawley?

    Just to get a flavour of her ideas on XMRV (for example) there is a discussion in the WPI facebook page of a recent talk by her.

    It's under WPI on facebook, Discussions, What we are up against.

    http://www.facebook.com/topic.php?uid=154801179671&topic=12698
     
  6. Daisymay

    Daisymay Senior Member

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    Thanks XMRV, well I suppose I shoudn't be surprised to read what Crawley said in that Dorset group talk but I kind of am, it is all so utterly blatantly awful and so shocking that an ME group would let it happen!
     
  7. Jenny

    Jenny Senior Member

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    QUESTIONS RAISED OVER THE TRAINING ROLE OF A NEW BODY FOR ME/CFS PROFESSIONALS

    The following statement was issued by the West Midlands ME Groups Consortium (WMMEG), which is to be sent to the All Party Parliamentary Group for ME:

    WMMEG call upon the British Association for CFS/ME (BACME) to re-write their constitution and to urgently address the issue of balance, content and appropriateness of their education and training programmes for UK healthcare professionals.


    WMMEG (West Midlands ME Groups Consortium)

    Apparently there is more on this on the ME Association's website.

    Jenny
     
  8. helsbells

    helsbells Senior Member

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    They really just won't go away will they!! Like the terminator only the bad ones! Thanks re the elucidation re the term astroturfing though - sorry too far back now to thank the actual elucidator but I can now overuse the term with venom :D
     
  9. Dolphin

    Dolphin Senior Member

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    Their conference is this week. If anyone hears anything, we'd all be interested (I imagine).
     
  10. Enid

    Enid Senior Member

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    If that lot - BACME - is British then I am not. Big name substance lacking. On the other hand the growing support for the WMMEG by increasing numbers of countrywide local support groups spells out the difference.
     

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