Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
Discuss the article on the Forums.

Brisbane and Gold Coast, May 12

Discussion in 'Upcoming ME/CFS Events' started by alex3619, May 10, 2016.

  1. alex3619

    alex3619 Senior Member

    Messages:
    12,384
    Likes:
    34,629
    Logan, Queensland, Australia
    NCNED is giving a public talk tomorrow at the Gold Coast at 1pm. I just found out about it, thanks to another member (who I will name if they would like me to).

    Here is the notice: https://www.sciencedaily.com/releases/2016/05/160510093906.htm

    I have great difficulty travelling on my own. If anyone is going from Brisbane to the Gold Coast for this, would it be possible to pick me up? I live between Brisbane and the Gold Coast, in Logan. I don't know what state I will be in but I am willing to have a bad day to attend this.
     
    merylg, MeSci, mango and 4 others like this.
  2. Kati

    Kati Patient in training

    Messages:
    5,446
    Likes:
    19,476
    I hope you find a ride, @alex3619
     
    MeSci, RL_sparky, Mel9 and 3 others like this.
  3. shannah

    shannah Senior Member

    Messages:
    1,342
    Likes:
    1,572
    An update on the latest would be wonderful.
     
    Little Bluestem likes this.
  4. shannah

    shannah Senior Member

    Messages:
    1,342
    Likes:
    1,572
    Here's a couple of articles on the new findings.

    http://app.griffith.edu.au/news/2015/05/12/griffith-research-sheds-new-light-on-cause-of-cfs/?src=hp

    http://www.abc.net.au/pm/content/2016/s4415928.htm


    To recap the information posted in the 2 links:

    New research from Australia into M.E. reveals that the genes are altered (which explains the symptoms but not the cause).
    This still leaves important questions as to cause. Why are the genes altered? What is altering the genes?

    They want to develop a blood test but this will take years to achieve.
     
    Mel9, Kati and Comet like this.
  5. Navid

    Navid Senior Member

    Messages:
    467
    Likes:
    304
    do these docs/researchers have any new treatments up their sleeves? no new treatments in so long. anyone hear anything about tavegyl?
     
  6. shannah

    shannah Senior Member

    Messages:
    1,342
    Likes:
    1,572
    I have a question. Do genetic changes take place in other diseases?


    From the release at this link:

    http://app.griffith.edu.au/news/2015/05/12/griffith-research-sheds-new-light-on-cause-of-cfs/?src=hp

    "The results reveal genetic changes in important receptors associated with immunological and cellular function and contribute to the development of this complex illness."

    "important signalling mechanisms are disrupted as a result of these genetic changes involving the detection and response to threats."

    “These are primitive genes that are involved in many cellular signals in the brain, gut, cardiovascular and immune systems, as well as in the mediation of pain.”

    plus the information at this site:

    http://www.abc.net.au/pm/content/2016/s4415928.htm

    DON STAINES: We're looking at changes in very specific parts of gene that then translate to certain receptors or proteins in the body that have key roles in metabolism, neuronal function, cardiovascular function and so on, so it's probably not surprising that it's taken this long to work it out.
     
    merylg likes this.
  7. Valentijn

    Valentijn WE ARE KINA

    Messages:
    14,283
    Likes:
    45,783
    I don't think that's what they're saying regarding ME. Just that they've found variants correlated with ME patients. These variants would be present since birth.

    But they typically have trouble with their statistical methodology, so I wouldn't take their genetic research seriously at this point.
     
    shannah likes this.

See more popular forum discussions.

Share This Page