1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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Bringing the FDA Stakeholder Meeting Home: One More Push

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Jun 7, 2012.

  1. Phoenix Rising Team

    Phoenix Rising Team

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    View the Post on the Blog
  2. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
  3. Brelliott

    Brelliott

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    This is excellent news, Cort, regarding the response from the FDA. I urge everybody who uses a computer and has access to this website to put forth every ounce of effort and energy in sending these daily letters to the FDA and others involved in the process of getting medication requests reviewed. It sounds to me that this is one of the most important issues we can hope to move forward in the advancement of treatment for ME/CFS. Obviously, Cort has faith in us, as ME/CFS patients/advocates/caregivers, to have a major impact on their decision to elect a specific full day or more for a stakeholder meeting sometime soon. We are the ones who can make that difference people.

    As an eight year sufferer, I know quite well how this illness has robbed us of a normal, productive and satisfying life. I URGE each one of you to take the bull by the horns on this issue today and every day until we receive productive results.

    Sincerely, Brenda Elliott
    CJB likes this.
  4. CJB

    CJB Senior Member

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    Oregon
    Bump. Time to send out today's letter.
  5. CJB

    CJB Senior Member

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    Oregon
  6. medfeb

    medfeb Senior Member

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    ggingues
    That's right. The new email is not being sent to these people.

    To all,
    If you have not done so yet, please take a few minutes to send in another letter. Your letters really can make a difference.
    Thank you!
    Mary Dimmock
  7. Tally

    Tally Senior Member

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    Is there anything that non-American citizens can do to help?
  8. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    NYC (& RI)
    Thanks everyone spearheading this important effort as well as everyone sending their letters in! This is crucial!

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