Bringing ME/CFS awareness to general public

[taniaaust1]

thought it would be good to start up a thread to which people can add ideas too. Please put in your advocacy ideas and I'll add them to this list.

1/ Radiation articles can be used as a tool for ME/CFS awareness by simply posting the following link in the comments http://www.ncf-net.org/radiation.htm . Better still include a comments about how sick ME/CFS is making you.


eg something like the following article can be commented on in this way http://www.care2.com/causes/fukushi...saster-that-wont-go-away.html#comment-5945108

 

[alex3619]

We have a numbers problem in our own community. Over 2,000,000 unique hits on PR last year, and yet only a few hundred post regularly, and there are only about maybe three thousand advocates world wide.

We need to engage the general public.

We also need to engage other people with ME and related illnesses.

We do need ideas on how to raise awareness. I hope people will post a few here. I am thinking about what I might like to suggest.

 

[knackers323]

We just don't have the extra energy to put into extra work. If each PWCFS could get at least one person to help in some way maybe we would get more done.

 

[catly]

We sure could use a celebrity spokesperson with a media presence, like Michael J Fox has done for Parkinson's.

http://www.dailyrx.com/slideshow/10-celebrities-chronic-illnesses

http://en.wikipedia.org/wiki/List_of_people_with_chronic_fatigue_syndrome