Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Brincidofovir Given to Ebola Patients.

Discussion in 'Other Health News and Research' started by Ema, Oct 9, 2014.

  1. Ema

    Ema Senior Member

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    Midwest USA
    heapsreal, Sushi and Little Bluestem like this.
  2. Jon_Tradicionali

    Jon_Tradicionali Alone & Wandering

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    Zogor-Ndreaj, Shkodër, Albania
    There's been discussion about the use of this drug on CFS patients for years.

    Like everything else, it's JUST been discussed, nothing else....
     
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  3. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    reading about this drug it seems very safe in that it is used in people with reduced liver/kidney function and causes no issues for them.

    I bet off label it would cost a fortune??

    I always wonder when these viral type outbreaks occur, why they just seem to mention supportive care is the only treatment. I would think if i was dangerously ill with something like that, they would atleast try interferon or immunoglobulins to give ones immune system a fighting chance.
     
  4. RYO

    RYO Senior Member

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    It is hard to read the news without reading something about Ebola and potential antiviral treatments. Chimerex is a company that manufactures Brincidofovir that is currently being tested for activity against Ebola.

    We should be petitioning our government to test antivirals for Enterovirus D68. Perhaps, it would lead to treatment for subset of CFS/ME patients that have enteroviral persistence.

    Just because viruses can't be detected in blood samples doesn't rule out persistence in tissue (muscle, nerves, endothelial cells, gastrointestinal cells, etc)
     
    Last edited: Oct 24, 2014
  5. Gingergrrl

    Gingergrrl Senior Member

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    I think someone else started a thread on Brincidofovir and Ebola last week (it might have been @Ema) but not sure where that thread is now. I wondered the same thing, if any of these new anti-virals for Ebola could be modified in some way to help a sub-set of PWC's? Don't know the answer, but it is a good question!
     
  6. Sushi

    Sushi Senior Member Albuquerque

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    Note: the two threads have been merged.
     
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  7. Sushi

    Sushi Senior Member Albuquerque

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    Many ME/CFS doctors have been waiting for this drug as Vistide has been helpful for a subset of patients and this oral version is much safer. I am not sure of the release date but it must be coming fairly soon--unfortunately with a big price tag I'd guess!

    Sushi
     
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