The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Brilliant ME/CFS videos - a guide to ME/CFS & going to the doctor (very funny but spot on too)

Discussion in 'General ME/CFS Discussion' started by Mary, Sep 10, 2017.

  1. Mary

    Mary Senior Member

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  2. Joh

    Joh Inactivist

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    Yes, they're awesome! Translated them into German, because I liked them so much. Also great:



    Edited to add: Sent the link to these 3 videos with German subtitles to the German ME charities, because we don't have much material about ME in German. Was disappointed that they didn't share them (yet), maybe because the language isn't "clean"? No idea. Thought it would be something funny, intelligent and different.
     
    Last edited: Sep 10, 2017
  3. Mary

    Mary Senior Member

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    @Joh - it was your post on the cat bore thread that led me to these videos! :lol: They are so well done, and funny too, thank you! :thumbsup:
     
  4. Hutan

    Hutan Senior Member

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  5. Barry53

    Barry53 Senior Member

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    I love the great analogy of Bob (who lost both his arms and legs in a freak photo copier accident :D) not needing to worry, because he is going to be able to exercise his way back to normality.
     
  6. Mary

    Mary Senior Member

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    That was brilliant! :nerd:
     
  7. Mary

    Mary Senior Member

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    I loved that too! :thumbsup:
     
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  8. bspg

    bspg Plant Queen

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    Uggggggghhhhhhh the one about going to the doctor.

    So. Spot. On.
     
  9. Joh

    Joh Inactivist

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    A new one:


    Another great video from Yulia, but different, because it's serious. Made me sad because she correctly explains how lucky she is that she got specialist treatment after just 7 months. And that her specialist (Susan Levine) said that treatment is most effective early in the illness. Here I am after 15 years with still no treatment and no chance to test LDN or antivirals. But great video to explain our situation to others.
     
  10. Philipp

    Philipp

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    I hope this does not mean she will exclusively date Norwegian women, because I am neither and while Yulia is very obviously marriage material, this might be too much of a disadvantage for me to overcome.

    Seriously though, it is amazing that she has gotten to where she is in just over half a year. It took me years to genuinely arrive at the 'if'-stage, to realize how serious this situation is and that it very probably won't be going away any time soon. I really hope that the comparatively early treatment will make a difference for her and that she will get her life back.
     
  11. Subtropical island

    Subtropical island

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    Love. :p:cry::lol::redface::jaw-drop::thumbsup:
    Link to website?
    Thanks :hug:
     
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  12. Joh

    Joh Inactivist

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  13. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    Yulia is on Twitter:
    https://twitter.com/FunWithCFS

    Check out the letter she wrote to the Guardian :thumbsup:
     
  14. TiredSam

    TiredSam The wise nematode hibernates

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    Nice letter, and very appropriate that it was filed under TwitDoc.
     
  15. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    It takes me a long time to buffer videos on my s-l-o-w dial-up connection, so that I can watch them. I just made it to the bearataur (in Positive Thinking). Hilarious. :rofl:
     
    Last edited: Oct 2, 2017
  16. Joh

    Joh Inactivist

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    Haha, took me some time to come up with a translation (subtitles) for the bearataur - learnt from Urban dictionary that he only lives in middle Colorado (and sucks at basketball?) and there's no German word for him yet. :)
     
  17. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    @Jon, I thought it was something she had made up. Didn't realize it 'exists' in this country. :jaw-drop: Guess I am going to have to check out this Urban Dictionary. :D
     
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  18. Joh

    Joh Inactivist

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