Phoenix Rising supports the Millions Missing global day of protest
Phoenix Rising is delighted to support the demands being made in the ME/CFS community’s first-ever global day of protest …
Discuss the article on the Forums.

Brian Walitt’s Radical Bias: Disorders of Subjective Perception, ME/CFS as Normal Life Experience?

Discussion in 'Action Alerts and Advocacy' started by Nielk, Feb 22, 2016.

  1. Nielk

    Nielk

    Messages:
    6,877
    Likes:
    10,607
    Brian Walitt’s Radical Bias: Disorders of Subjective Perception, ME/CFS as Normal Life Experience?
    by Jeannette Burmeister

    http://thoughtsaboutme.com/2016/02/...e-perception-mecfs-as-normal-life-experience/

    excerpt
    Read more here
     
    RustyJ, Jennifer J, Woolie and 5 others like this.
  2. Invisible Woman

    Invisible Woman Senior Member

    Messages:
    1,212
    Likes:
    7,414
    OK. I admit I didn't get to complete the end of the text because I was in danger of throwing my laptop on the floor...

    So fingers crossed Dr Walitt is just a bad nightmare - a figment of my imagination!
     
    Jennifer J, Hutan and barbc56 like this.
  3. Jonathan Edwards

    Jonathan Edwards "Gibberish"

    Messages:
    5,227
    Likes:
    31,870
    Wikipedia: Tilting at windmills is an English idiom which means attacking imaginary enemies

    I am not sure who Dr Walitt is trying to persuade of what but if I thought I had fibromyalgia I doubt I would find his approach persuasive.
     
  4. Valentijn

    Valentijn Senior Member

    Messages:
    14,281
    Likes:
    45,811
    I'd summarize it as "your chronic debilitating pain, cognitive dysfunction, and other symptoms are not actually a problem, so no need to worry about it."
     
    leela, worldbackwards, ukxmrv and 9 others like this.
  5. Cheshire

    Cheshire Senior Member

    Messages:
    1,121
    Likes:
    8,997
    His whole speach shows he's not concerned with patients (we can't do anything for you, accept that your life sucks, go and do some yoga and please leave us alone) but on giving a ready to use way of discharging patients without feeling guilty to his colleagues.
    His "theory" is messed up and contradictory to a point that makes one seriously question his mental abilities. He uses "concepts" like normality and abnormality in a totally incoherent way, that just serves his purpose. How this guy came to such an important hierachical position is beyond me.
     
    taniaaust1, SDSue, leela and 13 others like this.
  6. Comet

    Comet I'm Not Imaginary

    Messages:
    673
    Likes:
    3,615
    Yes, except to me it seems he is saying that we should accept that we think that our lives suck and just move along. Even though we might actually have symptoms from an imagined illness, docs shouldn't bother spending the time trying to unravel our Snuffaluffagus disease.
     
    Invisible Woman, ukxmrv and Woolie like this.
  7. Asa

    Asa Senior Member

    Messages:
    175
    Likes:
    526
    The Walitt narrative (2012):

    Polysymptomatic distress, psychocultural illness, somatization, bodily distress syndrome; psychogenic rheumatism: "'We think they are all crazy,' a distinguished rheumatology division head and professor of medicine told us, reflecting a not uncommon view…”

    “Fibromyalgia and 19th Century neurasthenia are often indistinguishable... Fibromyalgia…represents the end point of a continuum of polysymptomatic distress...

    Fibromyalgia is closely allied and often indistinguishable from neurasthenia, a disorder of the late 19th and early 20th century that lost favor when it was perceived as being a psychological illness. Fibromyalgia is also associated with psychological illness and socio-demographic disadvantage. However, its status as a “real disease,” rather than a psychocultural illness is buttressed by social forces that include support from official criteria, patient and professional organizations, Pharma [appealing to a “well-dressed middle class”], disability access, and the legal and academic community.”

    “'…once neurasthenia was viewed as psychiatric, a principal social function was lost.’” (Wolfe/Wallit quoting Wessely)

    “The very strong resemblance of fibromyalgia to neurasthenia is a key observation. Time brings clarity to confusing illnesses of the past, and we now recognize that hysteria, neurasthenia, and railway spine were almost always psychogenic disorders.”

    NOTE: Walitt quotes Simon Wessely, Per Fink and Edward Sharp. (Text written with Frederick Wolfe.)

    https://web.archive.org/web/20160223031446/https://www.arthritis-research.org/files/Wolfe (2012) Culture, science and the changing nature of fibromyalgia - NRR submission version.pdf
     
    leela, ScottTriGuy, ukxmrv and 5 others like this.
  8. sarah darwins

    sarah darwins I told you I was ill

    Messages:
    2,467
    Likes:
    10,480
    Cornwall, UK
    You have to wonder, if he's so sure that FM is no big deal / just everyday aches and pains etc ... why does he spend so much time talking about it and churning out fifth rate papers about it? Can't he find something more 'important' to work on?
     
  9. adreno

    adreno PR activist

    Messages:
    4,843
    Likes:
    11,018
    It must really give him a hard on to prove those patients wrong.
     
    leela, ukxmrv, Sean and 2 others like this.
  10. snowathlete

    snowathlete

    Messages:
    3,312
    Likes:
    14,610
    UK
    Because he gains from it himself. Same as the others promoting this BS. He gets paid to do "research" into it, to talk at conferences and in publications about it, etc. He's so offensive and unscientific.

    1. This guy clearly should not be involved in this NIH study.
    2. Neither should the person or persons who appointed him and I hope that's not overlooked.
     
    Karena, Asa, leela and 10 others like this.
  11. TiredSam

    TiredSam The wise nematode hibernates

    Messages:
    2,677
    Likes:
    21,535
    Germany
    Spouting psychobabble can be seen as a kind of career malingering. It's a very good way for anyone who doesn't want to work hard to achieve secondary gains in terms of status, ego, and power over the lives of very ill people. Just learn the vocabulary, start spouting and everything's valid, there's a peer group all playing the same game watching your back, and with any luck you can float to the top of the toilet bowl.

    Someone should really write a paper on the subject.
     
  12. Sean

    Sean Senior Member

    Messages:
    3,257
    Likes:
    17,984
    Because it is very hard to falsify the somatising interpretation. Almost infinite room to wiggle and dodge.
     
    Jennifer J, Woolie, ukxmrv and 3 others like this.
  13. Woolie

    Woolie Senior Member

    Messages:
    1,930
    Likes:
    14,556
    snuffy.jpg
    :rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl:
     
  14. Comet

    Comet I'm Not Imaginary

    Messages:
    673
    Likes:
    3,615
    snuffy tshirt.jpg

    <-- Dig my funky new avatar! Now I'm just like the cool kids. :cool:

    (Sorry for the hijack)
     
  15. Forbin

    Forbin Senior Member

    Messages:
    949
    Likes:
    3,982

    I pray thee peace, I will be flesh and blood;
    For there was never yet philosopher
    That could endure the toothache patiently,

    However they have writ the style of gods,
    And made a push at chance and sufferance.

    Much Ado About Nothing - Act 5, Scene 1
     
    Valentijn, Jennifer J, leela and 7 others like this.
  16. shannah

    shannah Senior Member

    Messages:
    1,356
    Likes:
    1,615
    Carol Head has raised the issue of Walitt with Vicky Whittemore at NIH.

    "Dr. Whittemore was very receptive to our strong opposition to Dr. Walitt’s participation in the study, but said that she has no role in the study design or staffing; that rests with Dr. Nath."

    "Solve ME/CFS Initiative President Carol Head will continue to raise the concerns over Dr. Walitt when she meets with NIH officials in D.C. on March 8 along with fellow advocate Mary Dimmock."

    More at

    http://solvecfs.org/NIH-Study
     
  17. wdb

    wdb Senior Member

    Messages:
    1,377
    Likes:
    2,956
    London
    I'd like to see him try and pull this crap in an ER department.

    So I see you are here for a *checks notes* 7 inch knife embedded in the chest, now before we go any further you should understand that it is really just a cultural construct the notions of what objects we should or shouldn't have embedded in our bodies. I need you to try to be more open minded about what can be considered normal, you need to realize it is not the knife itself that is the problem here rather it your experience of the knife and your preconceived ideas that it shouldn't be there is what's really causing you distress...
     
  18. leela

    leela Slow But Hopeful

    Messages:
    3,222
    Likes:
    7,232
    Couchland, USA
    My "subjective perception" is this guy doesn't know what the frak he's talking about but is convinced he channels Truth from some realm inaccessible
    to the rest of us, and is quite chuffed with his own solipsistically derived cleverness. Oh and he's probably been smoking a bunch of weed.
     
  19. Woolie

    Woolie Senior Member

    Messages:
    1,930
    Likes:
    14,556
    And the moral of the story: beware of anything labelled a functional neuroimaging study, whether its of FM or ME. Often just a thinly veiled attempt to regraft the old somatisation ideas onto a fashionable new "neuro" framework.
     
  20. Ecoclimber

    Ecoclimber Senior Member

    Messages:
    988
    Likes:
    2,424

See more popular forum discussions.

Share This Page