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Breaking point with ME

Discussion in 'General Symptoms' started by Misfit Toy, Aug 10, 2011.

  1. Misfit Toy

    Misfit Toy Senior Member

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    This year has been the worst. I have had back problems as of falling this past June, my fibro has gone bonkers and now I am in PT. I hardly sleep. I get 4 or 5 hours of sleep and then I am awake.

    Now, I have urethritis or a bladder infection. Why? Because the one time I feel like I have a sex drive, I take care of it myself since no one is or can be in my life and what happens? I get sick. It's pretty messed up that I can't have pleasure at all. Not at all.

    Have you ever seen a disease like this? Is this not the most ridiculous thing? I am absolutely exhausted with trying to keep up with my constantly changing symptoms or disease. I have zero life due to going to doctor's all of the time, or just exhaustion.

    I am so upset with the fact that every time I have sex or handle it myself, I get sick with a bladder infection. Every time I do anything of pleasure or fun, I end up in bed, phone off, sick.

    I can't take it anymore.

    And yes, I am on D-Mannose. Does nothing for me.
  2. madietodd

    madietodd Senior Member

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    Is it Uva Ursi that's good for bladder infections? One of my girls used to get them, and she went on a maintenance dose after the last attack and has been fine. Not saying this is the cure for everybody........but a maintanence dose of a tincture probably won't interfere with other ME issues. It's also easy to find.

    I'm sorry this is such an awful time for you. Do you have anything you can fall back on, when you hit a rough patch? I've been on a long, slow slide, and have been - shall we say 'cranky' about it? I decided I'd better start meditating again or I'd completey lose all perspective. That's my fallback.

    Well, that, and I get off chat and stop seeing people, because my motto becomes "Do no harm." Like I said, I get cranky.

    :hug:

    Madie
  3. LaurelW

    LaurelW Senior Member

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    I've heard it said that if you go pee immediately after sex, it flushes out any organisms that might be around that could cause the infections.
  4. Misfit Toy

    Misfit Toy Senior Member

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    Madie,

    Uva Ursi. I forgot about that one. I have IC and yet have no symptoms unless I have sex or....take care of it myself. My doctor says to abstain. RIGHT. He and I will have a talk today.

    Actually, the one thing that is saving me right now and this may sound funny, but is avoiding people. I talk to my mom and other CFS folks, but that is it. I can't deal with well people and their lack of understanding.

    I am sorry you are in a rough patch too. THEY STINK!
  5. Misfit Toy

    Misfit Toy Senior Member

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    And yes, I pee, I wash up. I do everything you are supposed to do and nope...I get one regardless. Never fails.
  6. taniaaust1

    taniaaust1 Senior Member

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    Tell he he needs to put himself on some testosterone as obviously his is low as he isnt interested in sex lives.

    On a more serious note. If you arent fructose intollerant, try taking a glass of cranberry juice per day. Its a very old remedy for preventing urinary tract/bladder infections which has also been backed up by studies. It wont cure it thou if you already have one, but it future may help prevent.

    I know how you feel there. I do two doctors or specialists appointments per week (that's my limit, I go very downhill when I do more) ... Ive NEVER managed to keep up with this illness and get in front of it as more is always just happening and more specialists to see or more tests need to be done. I get 90 different symptoms with the ME or separate things going on... that makes a heck of a lot of doctors appointments, then one has to also manage all the problems found which means even more specialists.

    Its sooo tiring doing these doctors appointments that every now and then I need to take a break and tell myself "NO MORE" and stop seeing doctors for a while (and will then only go to the hospital in major emergency). I just before in one of my posts were saying, Im just starting a "doctor holiday" for a month as I so so need a break. (It just gets to the point where innerly I just want to scream and scream as Im so tired of all the doctors appointments and just cant bear the thought of more).

    All my energy gets used up on my medical appointments which means I then dont have any for other parts of my life
    ....

    Anyway.. try cranberry for a while if you can have it.
  7. alice1

    alice1 Senior Member

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    it's a full time job without pay.And I agree taking a break from docs is really important.
  8. Misfit Toy

    Misfit Toy Senior Member

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    Thank you. BTW, I have interstitial Cystitis. Not sure if you know what this is but I can't have cranberry juice. It makes the bladder goes nuts. My bladder has cracks in it otherwise called hemmorages. Anyway, the basic rules for UTI's do not apply. Including...peeing after sex, keeping my bod clean, etc. It's a whole different ball game. But, thank you!
  9. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    Kind of another reason why I like playing computer games...no complications when "waggling yer joystick"! :p

    In general, letting air around yer "nether parts" is big help on keeping such problems at bay.
    I don't know if yer male or female, but women in general, and men with foreskins usually find that simply not wearing underwear and letting air around themselves will keep such things down to some degree, because air's the best killer of bugs that build up around yer moist flesh
    Maybe be hard to achieve when you are married with kids of course, lol, but if as said, on your own, an hour or two a day with nothing underneath may help?

    UV light's also a great killer of such bugs, but the flesh down there's more easily harmed by such so it's not without risk and of course you don't want to have anyone seeing you! :p
    But as said to a relative of mine who's job was in 150F heat leaving him drenched in sweat and thus terrible thrush and skin problems because of such, sun bathing starkers out his back is much much better than all the ointments (it worked, too, cleaned it right up)



    PS
    great icon, saw a Spitfire flying over Lord Dowding's hometown as a memorial to him, when I was a lad, awesome! :)
    THough my fave WW2 plane's the Typhoon
  10. Min

    Min Senior Member

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    Please don't take cranberry for IC, it is so acidic it will send your bladder into orbit.

    I have really bad IC and follow the diet, only drink water at room temperature etc etc but it still rules my life and stops me from sleeping. The only thing that helps is to stay permanently on antibiotics, which my doctor will not prescribe.
  11. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    ah really sorry to hear that.

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