Discussion in 'XMRV Research and Replication Studies' started by RustyJ, Oct 2, 2011.
What makes you so prescient of this? I don't like the tone of this post.
I am actually happy to see the WPI shut down its research effort. I think they have handled XMRV just about as poorly as they possibly could. They have reached a point of no return, no one in the science community takes them seriously, if they did make another big discovery no one would believe them. They have made CFS research look like a joke to outsiders looking in and this whole thing has been coming to a breaking point for sometime. My only hope at this point is that they have not done more damage then good for CFS research.
The part i am really not understanding is that only yesterday i read that Dr. Mikovits had stated that the sequencing would be finished within a couple of weeks (i found this on here) - and Dr. Jamie's blog mentions knowing about this for a couple of weeks, which sounds like Dr. Mikovits would have known about the situation with the WPI at the time (and when she was presenting in Ottawa). Sorry in advance if i'm not making sense but i'm in shock and upset right now.
Is she saying this is an explanation of BWG WPI discrepancies? Mikovits trusted VIPdx, but VIPdx let her down?
This sounds really ominous. Well, I guess if information needs to come out, then it needs to come out. I never lose hope, ever.
So does this mean no research but they still treat people??
Its abit of a shock but not suprising i suppose
The BS just never ends! Why oh why cannot humans just move ahead and do what needs to be done with out all these crazy personal/political obstacles? I wish we could just know the whole truth now, so we could move on.
I feel like I've been beaten up.
Many lessons to be learned.
Please be prepared for the politics, media, and special interests if you are involved in trying to find the truth in CFS research.
hugs for you, leela
Thank you, Willow.
And hugs for everyone, too.
I didn't read it that way either. It says she did her own tests too. OTOH, her statement is sort of unclear.
Actually, that's what I meant, the WPI tests were Mikovits tests, just not VIP dx tests. Sorry it is a bit confusing. It is arguable whether Mikovits will be able to take her tests with her, they probably will be kept by WPI, so they will be WPI tests. In my reading of it Mikovits tried to do the right thing by patients by declaring the VIP dx test invalid, but WPI didn't want to do this. Perhaps WPI did want to stop them, but in a way that didn't hurt them as much (hope I am not restating the obvious).
I guess the bad news coming could be a full retraction of Lombardi science paper.
If Silverman assays contaminated, Lombardi's (I think his were being used by VIP) assays not accurate, that's two-thirds of Science paper gone.
What a ride this has been for the last two years. I wouldn't have missed it for the world.
fyi, there is another thread on the topic, that needs to get merged. I have PMd an admin.
Thanks, I needed that. Will need some more in the coming days, I'm sure. Hugs out to everyone, too.
The truth is always better. Ugly is OK for me as long as its factual. It is uncertainty that is the biggest issue for some of us. In my own case I can handle bad news easily - confused contradictory news however sets my brain into a spin. My reaction to the WPI news was a sad ironic laugh, I was more put out by the implications that the BWG results would be negative, while other pointers suggested it would be positive. For me the actual results were better than the confusion that preceded the announcement, regardless of the negative results. The history of CFS is full of disappointing things, this is just one more.
Counter-factual media claims are what annoy me, particularly hyperbolic ones. If the reporting is accurate I may not be happy but I accept it.
I do wish everyone involved the best, but we need the full story before we know how to react. The WPI has changed the face of ME and CFS research forever, regardless of how things turn out. More researchers are aware of the issues - I can only hope this bears fruit in time. My biggest concern at the moment is the implications this might have for the Lipkin study.
I am with you on this, Leela. As if we need more stress and confusion!
Just really truly absolutely insane.
PS... and yes, HUGS, BIG HUGS for all of us.
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