Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Brave Sir Prof Wessely discusses death threats 29th March 2017

Discussion in 'Action Alerts and Advocacy' started by Countrygirl, Mar 1, 2017.

  1. lilpink

    lilpink Senior Member

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    JohntheJack likes this.
  2. Jan

    Jan Senior Member

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    'I hope you die' does not equal 'I'm going to kill you ffs!
     
  3. Cinders66

    Cinders66 Senior Member

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    That's a great find. Much to read. Obviously all expressed with strong language. It seems the man is Dutch and has used Phoenix rising and someone then copied the last bit I nto an email?
    In the context of the blog, a lot about Wesselys war work, the lyric was not likely intended as a death threat originally , although I suppose the email senders intentions were not clear.
     
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  4. Esther12

    Esther12 Senior Member

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    To me, it doesn't look likje something that was sent as an e-mail. Who knows though? That Marteens guy was pretty weird imo. [By golly-gosh, even lovely Esther12 gets called an 'obvious troll' on that website! Do I get a bravery award for not caring?]
     
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  5. Esther12

    Esther12 Senior Member

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    I think it's entirely possible that it was not sent as an e-mail, and the BMJ just claimed that it was.
     
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  6. Daisymay

    Daisymay Senior Member

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    lemonworld, Jan and lilpink like this.
  7. JohntheJack

    JohntheJack Senior Member

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    Swansea, UK
    Thank you everyone for your responses.
     
  8. lilpink

    lilpink Senior Member

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    I think that's a very valid question. One which SW nor the BMJ are likely to bother to answer.
     
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  9. user9876

    user9876 Senior Member

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    If the person had a mental illness such as schizophrenia then Wessely's actions would probably be frowned upon. Equally labeling a whole group of patients due to one or two people is wrong and just shows a huge level of prejudice that would be unacceptable with any other group.
     
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  10. user9876

    user9876 Senior Member

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    I wonder if it is worth reflecting on why this example was chosen. Quoting Dylan is not a death threat but an expression of great dislike and a suggestion that Wessely should be accountable for his actions. When Dylan wrote the song he wasn't accused of threatening to kill those involved in the military and the arms industry.
     
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  11. Tyto alba

    Tyto alba

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    Very poor that this sort of thing can be used to invoke the guilt by association fallacy for all M.E. sufferers.
     
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  12. Webdog

    Webdog 84-91% are undiagnosed

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    Someone should contact Zimmerman and let him know how an entire patient population has been painted as dangerous simply because someone quoted his lyrics. Wonder what he'd say?
     
  13. slysaint

    slysaint Senior Member

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    the answer my friend is blowing in the wind.............
     
  14. Chrisb

    Chrisb Senior Member

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    We are starting to get into interesting territory.

    We are apparently not allowed to criticise Sharpe for his "undeserving sick" comment on the basis of its literary allusion, which went unnoticed at the time.

    Meanwhile, Wessely et al. are permitted, perhaps encouraged, to continue to use this apparently no more obscure quotation against a group of hundreds of thousands of people. Consistency does not seem to be a strength of the BPS crowd.
     
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  15. Esther12

    Esther12 Senior Member

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    Also though, lets not forget the weird stuff like: "an evident dr. Mengele in human motivation. You're the born personal physician of Heydrich, Goebbels or Hitler."

    It's not particularly surprising that there'd be an attempt to use stuff like against us, even if trying to use one patient's bizarre blog in this way would be seen as unacceptable for most medical conditions.
     
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  16. Daisymay

    Daisymay Senior Member

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    Of course it's unacceptable but that's not the point. The point is Wessely's use of the blog, to in effect vilify everyone with ME and boost his own reputation.

    I reckon Wessely is in breach of several of the GMC Good Medical Practice Duties of a Doctor:

    http://www.gmc-uk.org/guidance/good_medical_practice/duties_of_a_doctor.asp

    But I don't suppose it's of any consequence, he, and his colleagues, act with impunity.
     
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  17. Cinders66

    Cinders66 Senior Member

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    I don't think it's beyond credible that Wessely and Esther and white have received a few nasty emails over the years, there's great distress and hostility to them in this community. The fact they chose to make this the defining way CFS is viewed in uk as an unpleasant, dangerous field with militant and ungrateful patients and say stuff like loads of researchers been forced to leave the field really annoys me though. If only they had frankly, we still have the Kings lot, the Esther type as top dogs and just a tiny few very quiet, low funded, low key biomedical researchers. If you're worried some patient behaviour deters researchers (they aren't really) then going to the press big time about it is surely the last thing you'd do? That Wessely can continue to spin himself as a victim and a learned success at the top of his career rather than a failed, manipulating maligning medic still baffles me but probably reflects how much the medical profession are fundamentally unsympathetic to MUS & fatigue illness.

    When is this all going to end I say...
     
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  18. Dolphin

    Dolphin Senior Member

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  19. lilpink

    lilpink Senior Member

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    I'm glad Twitterland is responding to this but it's not strictly true is it? It *was* a case we knew PACE was fundamentally flawed years ago because the data they were perversely happy for us to see in their published papers didn't add up in and of itself. That's why people such as yourself, not to mention the monster-tome by Hooper and Williams, were able to dissect PACE to elucidate its faults years before the ICO demanded QMUL to release the specific data Matthees et al had requested. That data is equivalent to the 'belt and braces' to support the contention that the PACE Trial was seriously flawed, (and almost certainly fraud (imo) ) but had anyone outside the ME community listened and believed what they were being told they would have agreed that the alarm signs were there right at its inception. Thankfully some people outside the 'Community' did listen (Tuller and Goldin amongst them) but it's been an uphill struggle for even those individuals with their excellent connections to push through the carapace the PACE PI's built around this Trial.
     
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  20. Valentijn

    Valentijn Activity Level: 3

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    Yes, but it's more polite and productive to pretend that our new supporters had an excuse to not listen to us before :p
     
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