That's why some people here took the initiative and are working very hard on the Facebook page ME/CFS Fundraising Group at https://www.facebook.com/groups/115200951912652/ After many months of begging, there are 101 members today! Facebook is THE social network system that reaches the most people today. I think that there is a huge amount of apathy from patients. They don't feel that they can make a difference, so why try. They have been sick for a long time with no positive treatments for them. They don't feel like their action, no matter how easy it is to do, will change their situation. How does one bring them to the awareness that it is US, the patients who CAN make a difference?