Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
About the Campaign
Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) represents a challenging intersection of immunology, neurology, endocrinology, and other fields. Investigating such a broad and complex condition requires access to technology, instrumentation, and methods that are not available at the average doctor’s office.
The Martinos Center for Biomedical Imaging in Boston is one of the world’s premier research centers. This unique facility consistently produces high-impact research largely due to a highly collaborative organization and culture.
Clinical researchers such as neuroscientists, neurologists, and immunologists are able to push the envelope in their respective fields because they work alongside bioengineers, radiologists, and physicists with expertise in imaging technology.
Thus we have the ability to answer challenging research questions due to the advances in the technology that are happening on our own campus.
Dr. Michael VanElzakker is a Martinos Center research fellow affiliated with Massachusetts General Hospital, Harvard Medical School, and Tufts University.
He has a background in neuroendocrinology and clinical neuroscience and is known for an influential hypothesis of ME (CFS) that centers on the intersection between the nervous and immune systems.
Our ongoing research program includes three projects:
1. Neuroinflammation scanning
2. Scanning before and after exercise challenge
3. Targeting cellular activity in the Nucleus of the Solitary Tract
Your contribution will fund these studies. Each answers novel questions in novel ways, elucidating the mechanisms of ME (CFS) pathology.
Why can't he apply to NIH, were they not saying recently that lack of funding is partly due to low number of grant applications from ME/CFS researchers? Really, the patient community is constantly donating....there are only so many researchers we can help.
Why can't he apply to NIH, were they not saying recently that lack of funding is partly due to low number of grant applications from ME/CFS researchers? Really, the patient community is constantly donating....there are only so many researchers we can help.
That's great to hear Robin, I'm sure we have the money in the community for this, its just about getting it out to multiple sources like here, maybe gofundme?
@neweimearSo I think there is a lot of potential for more to be raised. For example when one sees how much gets spent on often very speculative therapies, a lot of people do seem to have some money.