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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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BP Monitor for POTS

S

sandgroper

Senior Member
Messages
104
Location
west australia
Just used my HR monitor last appt. It was enough for that dr. I get too ill from the trip to the specialists and have extreme reactions
to being upright that they have not seen. So with the dr watching the HR increase and the tremors start he was able to get
me laying down before i had a fit. When i have had the extreme symptoms it has led them to believe psych. WIth my own HR
watch i could just do a very simple test. Mind you it was not good enough for the GP who thought it just meant deconditiong
 
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