1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
New Exercise Study Brings Both Illumination and Questions
Simon McGrath looks at new objective evidence of abnormal response to exercise in ME/CFS patients, and the questions that researchers are still trying to answer ...
Discuss the article on the Forums.

Borrelia

Discussion in 'Lyme Disease and Co-Infections' started by Daffodil, Sep 4, 2013.

  1. Clodomir

    Clodomir In hibernation mood

    Messages:
    155
    Likes:
    146
    Belgium
    Hi,

    I have also lyme, and I take clarithromycine since nearly 3 month but no rifampin. And i have no herxing... Is it possible? Just a little bit join pain but I take LDN and nexavir...

    Is it normal?

    Have a nice day.

    Clodomir
  2. maryb

    maryb iherb code TAK122

    Messages:
    2,740
    Likes:
    1,762
    UK
    Sorry to hear you're still feeling so sick daff - hope things improve soon for you.
  3. chronix

    chronix

    Messages:
    62
    Likes:
    59
    Pardon my ignorance but has this test been approved for borrelia? Only see tuberculosis mentioned in that quote from the FDA.
  4. Ema

    Ema Senior Member

    Messages:
    3,187
    Likes:
    3,330
    Midwest USA
    That doesn't mean your current dose of the med hasn't changed your cortisol metabolism in 2013. Just something to keep in mind if they symptoms persist past what would typically be considered a herx. There are many other abx that do not have this effect on cortisol metabolism.
  5. cigana

    cigana Senior Member

    Messages:
    576
    Likes:
    169
    UK
    Hi Clodomir,

    I would like to know too. Because I am the same as you, many months of antibiotics but no herxing (except significantly increased depression)....
  6. Daffodil

    Daffodil Senior Member

    Messages:
    2,776
    Likes:
    758
    I heard that some people don't herx...
  7. Clodomir

    Clodomir In hibernation mood

    Messages:
    155
    Likes:
    146
    Belgium
    To Cigana,

    Yes, you are right, i am more depressed and sensitive...
    But does it mean that it is working or not?

    Have a nice day

    Clodomir
  8. acer2000

    acer2000 Senior Member

    Messages:
    571
    Likes:
    201
    Yeah, I noticed this as well. Is there info about this test as it specifically relates to testing for Lyme disease?
  9. Lala

    Lala Senior Member

    Messages:
    317
    Likes:
    57
    EU
    No, it was not approved by FDA as far as I know.
  10. cigana

    cigana Senior Member

    Messages:
    576
    Likes:
    169
    UK
    According to my doctor, yes. But I don't feel any better after around 8 months.
  11. Ema

    Ema Senior Member

    Messages:
    3,187
    Likes:
    3,330
    Midwest USA
    She was treated in the hospital with IV steroids and then her antibiotic was changed. She still has adrenal insufficiency and takes a daily replacement dose of hydrocortisone to replace what her body is no longer able to make. To be clear, the antibiotic did not cause the adrenal insufficiency but the higher cortisol demands upon the adrenals exposed it.

    Adrenal insufficiency is a label recognized by medical professionals and it means something specific in terms of the adrenals ability to respond (or not) to ACTH produced in the brain.

    Long before most people present with AI, they may display symptoms of HPA axis dysfunction which some doctors will call adrenal fatigue.

    I personally hate the term adrenal fatigue because so many doctors associate it with quackery and disregard the real symptoms infection can cause in dysregulating the endocrine system.

    I would consider doing a saliva cortisol test to see how much cortisol your adrenals are producing across the day if you are concerned about your levels.

    Ema
  12. Legolas

    Legolas

    Messages:
    59
    Likes:
    43
    Belgium
    I have Bartonella and Lyme and I've been taking Clarithromycin 500 1/d for about 2 months now.
    In the beginning i had a mild herx raction; some headache and some joint pain, wich i usually don't have. Those symptoms faded away after couple of weeks. I am, however, improving smal step by step. I take biofilm destroying agents* with it and berberin.
    * I was prescribed biofilm defense (r) but i also took some lumbrokinase and EDTA with it.

    The interesting thing is that i recently ran out of clarithromycin and i took some azithromycin which i had left from an earlier AB course. I experienced herxing the day after but now with other symptoms; i had a sudden flu like feeling with cold chills for a few hours and gastric pain and diahhrea. I had this 2 times, allways the day after i took it.
    I think the kind of AB matters a lot.
    cigana likes this.
  13. Lymelight

    Lymelight

    Messages:
    23
    Likes:
    31
    Brussels, Belgium
    Hi Legolas,

    What type of Berberine do you take and in which quantities ? Does it help ?
  14. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    6,577
    Likes:
    5,347
    Albuquerque

    My doc recommended that I take Thorne, 250 mg, twice a day. Seems to help me.

    Sushi
    Lymelight likes this.
  15. Lymelight

    Lymelight

    Messages:
    23
    Likes:
    31
    Brussels, Belgium
    Thank you Sushi. Are you sure it is 250 because I can only find berberine 500 at Thorne ?

    Thank you
  16. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    6,577
    Likes:
    5,347
    Albuquerque

    I split the capsule.

    Sushi
    Lymelight likes this.
  17. kearso

    kearso

    Messages:
    11
    Likes:
    3
    azithromycin really isn't the best for that I think?

See more popular forum discussions.

Share This Page