Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Books on EDS Ehlers-Danlos syndrome

Discussion in 'Connective Tissue Disorders/Ehlers-Danlos Syndrome' started by Allyson, Feb 13, 2013.

  1. Allyson

    Allyson

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    Australia, Melbourne
    Here is a link to some books on EDS which some think may be a disease in the same spectrum as ME

    If you scroll down there are several books recommended below the Tinkle one.

    Also I have found the EDS type 3 fb page and the symptoms are all the same as we discuss here - plus many of them there have joint hypermobility though

    http://www.amazon.co.uk/Hypermobility-Handbook-Management-Ehlers-Danlos-Syndrome/dp/098257715X

    for more on the ralationship of EDS to ME see this PR thread

    http://forums.phoenixrising.me/index.php?threads/is-me-due-to-ehelrs-danlos-syndrome-stretchy-veins.20351/#post-310872
     

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