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Book published this week in UK referring to ME as psychosomatic

SilverbladeTE

Senior Member
Messages
3,043
Location
Somewhere near Glasgow, Scotland
Daisymay
ah yes, the "Establishment's" goon squad as usual trying to "airbrush" history so everyone accepts the bullsh*t official "expalanation of events"!

Politics and power are RUN by conspiracies and always bloody HAVE BEEN!
Julius Casear was murdered by a conspiracy, and he himself conspired throughout his political career using public speakers to ruin the reputation of his rivals, etc.

When you get to the modern era, we are chock full of hard evidence for conspiracies.
The number and severity are staggering
Tuskegee Experiment;
Radiation experiments on unsuspecting civilians including pregnant women;
over throw of the democratic Iranian government and setting up concentration camps and torture regimes by America which itself was the land which enshrined the rule of law and civil liberties (hypocrisy) and end result has been belligerence and terrorism on BOTH sides for decades;
World War 2 started by a German conspiracy to blame the Poles for attacking a radio station and also before then, the Japanese also did a "false flag" to start their war in China.

etc etc

Folk who don't believe in conspiracies are the lunatics!

Some conspiracies don't have solid evidence to back them
Chemtrials and so-called "fake lunar landing"
but even those have original seeds of "legendary" issues so we can't put them 100% to rest
During Cold War both sides did experiment on the Public in massive tests of the systems to weaponize bio-chem agents, that is recorded fact, that later gave rise to the "chemtrail" idea. Accidents and colossal arrogance also led to accidental releases or deliberate tests on innocent victims.
Sodding lunatics here in UK at Porton Down sprayed VX nerve gas from a helicopter in a military test zone...UK is tiny, it doesn't have vast empty deserts like the US has and VX is very persistant and incredibly toxic, freaking criminal lunatics!

and of course it behoves Wessely to deny conspiracies, since he's involved in one: to deny and cover this illnesses' reality up!

And we damn well have proof of conspiracy in this area, now
http://www.theguardian.com/environm...from-mps-for-inquiry-into-sheep-dip-poisoning
 

Gingergrrl

Senior Member
Messages
16,171
If my HR (without meds) is in the 160's and my BP is 85/55 (approx) how would she explain that as psychological? Not expecting an answer just thinking out loud.
 

Kyla

ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ
Messages
721
Location
Canada
If my HR (without meds) is in the 160's and my BP is 85/55 (approx) how would she explain that as psychological? Not expecting an answer just thinking out loud.

My guess is she would explain it by not bothering to check your blood pressure or heart-rate ;)

Remember, we are supposed to have normal test results, therefore you should not run tests that might find abnormal test results. :rofl:
 

alex3619

Senior Member
Messages
13,810
Location
Logan, Queensland, Australia
Folk who don't believe in conspiracies are the lunatics!
Most conspiracy theories are wrong. The reason I have time for conspiracy theories though is they keep people alert, and sometimes they help uncover and deal with conspiracies.

Some quotes to consider:

Whenever you're faced with an explanation of what's going on in Washington, the choice between incompetence and conspiracy, always choose incompetence.
Charles Krauthammer

Versus this:

Conspiracy theorists of the world, believers in the hidden hands of the Rothschilds and the Masons and the Illuminati, we skeptics owe you an apology. You were right. The players may be a little different, but your basic premise is correct: The world is a rigged game.
Matt Taibbi

http://www.brainyquote.com/quotes/keywords/conspiracy.html

Let me propose what is probably not a new conspiracy theory: The biggest conspiracy in the world is that most issues are caused by ignorance, incompetence, and ineptitude. The conspiracy consists of making people think its all due to authoritative appropriate leadership, and covering up mistakes.
 

Kyla

ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ
Messages
721
Location
Canada
Good answer and I suspect you are right! I actually have several abnormal tests like histamine 3x the normal limit and the highest EBV IgM and EA viral titers of my entire life but I wouldn't expect someone of her caliber to know what those big words mean.
I have had tons of abnormal test results (just not ones that point to any other specific disease), and it sounds like this is the case for many here.
Not to mention the specific tests that ME specialists run because they are often abnormal.
The idea that we all have normal test results seems to be fiction.
 

alex3619

Senior Member
Messages
13,810
Location
Logan, Queensland, Australia
The idea that we all have normal test results seems to be fiction.
What we usually have is normal results on a very standard battery of tests. They don't have to go far outside the box to find tests with abnormal results though, even using only 1940s technology. Now it turns out that all they may need to diagnose CFS is an opthalmascope and some knowhow.

The issue, and where they distort and blur the line, is that there is no validated diagnostic test. Ergo you don't need to test for established pathophysiology and degree of disability? Its a leap, and one designed to serve the interests of low cost medicine. Simply ignore anything that might be expensive.

PS: The opthalmascope is 1852 technology. Yes, that's right, nineteenth century technology.
 
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user9876

Senior Member
Messages
4,556
My guess is she would explain it by not bothering to check your blood pressure or heart-rate ;)

Remember, we are supposed to have normal test results, therefore you should not run tests that might find abnormal test results. :rofl:

One doctor drew a normal distribution curve and said most peoples test results are in the center but some peoples test results can go right to the edge and thats ok. Basically a result didn't make sense to him so he claimed it was normal even though it was flagged as out of range.
 

SilverbladeTE

Senior Member
Messages
3,043
Location
Somewhere near Glasgow, Scotland
Alex
I have often said the real conspiracies are not some "uber super doper cabal of The League of Super Evil" :p
but dirty deeds done dirt cheap....
and there are vast numbers of them, all eating away at the safety of our governments, bureaucracies, justice and other systems, and also, our health and safety as citizens, as each problem not dealt with honestly, such as M.E. or many other scandals, contributes to a poisonous synergy that ruins society and prevents it being what it could be for its citizens.

LOSEGroupPose.jpg
 

Sasha

Fine, thank you
Messages
17,863
Location
UK
Aaronovitch's review was published 6 June.

Have any letters of objection been printed in the Times yet?
 

eafw

Senior Member
Messages
936
Location
UK
Aaronovitch's review was published 6 June.

Have any letters of objection been printed in the Times yet?

Maybe there'll be an update from Charles in this thread if it does.

http://forums.phoenixrising.me/inde...n-imaginary-illnesses-including-me-cfs.37961/

Would guess if it does get published it should be today as the Saturday edition is where the original review was?

Aaronovitch has a history of slandering ME patients, so not suprising he is having a go again when the opportunity presents.

http://www.meassociation.org.uk/2011/08/david-aaronovitch-column-in-the-times-4-august-2011/
 

nasim marie jafry

Senior Member
Messages
129
Thanks to those who read my Goodreads review. I get no pleasure whatsoever giving a book one star but she has offended me greatly as both a pwME and as writer. And it's truly disheartening on Amazon UK, none of the 5 star reviewers seem to understand that this goes way beyond how many stars Suzanne's book gets - they just don't get why pwME are protesting with 1 star reviews, retorting that ''ME/CFS' is only one chapter of the book'. They have no clue of the stinking politics around this illness and what we have had to endure. One reviewer actually said that Suzanne is on our side and a great advocate for pwME. I am hoarse responding on Amazon, and I can see that whatever any of us say falls on deaf ears:

http://www.amazon.co.uk/Its-All-Your-Head-Imaginary/dp/0701189266/ref=sr_1_1?s=books&ie=UTF8&qid=1434291458&sr=1-1&keywords=suzanne o'sullivan
 
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Sasha

Fine, thank you
Messages
17,863
Location
UK

You're doing a great job there, Nasim, but I wouldn't assume it's falling on deaf ears. I bet Suzanne O'Sullivan is reading you, for starters, and that others are reading the 1* reviews and are getting the point. And not buying the book.

I think the key questions that have been raised will have an effect: why has she ignored the scientific evidence on ME, and if you had MS, how would you like to be treated as though it was psychosomatic?

The people who don't seem to mind 250,000 UK PWME being thrown under the psychosomatic bus seem bizarrely unable to imagine themselves in someone else's position. I don't know what's wrong with them.
 

alex3619

Senior Member
Messages
13,810
Location
Logan, Queensland, Australia
There are a large number of one star reviews, mostly by ME patients.

I am slowly moving to the view that a tolerance of somatization and other psychogenic categories within medicine brings the entire discipline into disrepute. Its past time that medical professionals insisted on science, not rampant speculation which has authority only because they cite other rampant speculation, which cites yet other rampant speculation.
 

nasim marie jafry

Senior Member
Messages
129
PS. Also, this is boring admin stuff, but I can't save/change my password, I get an error - so every time I log on I have to go to forgot password link...!