Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
Discuss the article on the Forums.

bombardment

Discussion in 'Action Alerts and Advocacy' started by jimbob, Jun 3, 2010.

  1. jimbob

    jimbob ME/CFS84-XMRV+

    Messages:
    321
    Likes:
    9
    myrtle beach, s.c.
    Let me know what you think? We compose a letter to the CDC asking them what they are doing in regards to the recently discovered retrovirus , the millions of people who may be suffering worldwide from it's involvement, and the potentially dangerous situation it may cause to our blood supply! etc. etc. Then once a day, everyday indefinately we each e-mail this and also forward cy to a major news network, possibly the same one?
     
  2. awol

    awol

    Messages:
    417
    Likes:
    0
    I think they might end up needing the bag. ;)
     
  3. jimbob

    jimbob ME/CFS84-XMRV+

    Messages:
    321
    Likes:
    9
    myrtle beach, s.c.
    That's better than holding the bag!!
     
  4. justinreilly

    justinreilly Senior Member

    Messages:
    2,496
    Likes:
    1,214
    NYC (& RI)
    Excellent idea.
     
  5. usedtobeperkytina

    usedtobeperkytina Senior Member

    Messages:
    1,472
    Likes:
    498
    Clay, Alabama
    I'm game.

    Tina
     
  6. Robyn

    Robyn

    Messages:
    180
    Likes:
    0
    xxxxxxxxxxxxxxxxxxxxxxxxx
     
  7. jimbob

    jimbob ME/CFS84-XMRV+

    Messages:
    321
    Likes:
    9
    myrtle beach, s.c.
    Can somebody a little more knowledgable than me write something fairly concise and to the point so we can get this started? Than it's just 2 clicks a day and bam!!!!!
     
  8. justinreilly

    justinreilly Senior Member

    Messages:
    2,496
    Likes:
    1,214
    NYC (& RI)
    Macros

    IMO might as well send it to everyone in the lines of command from both Unger and Hanna up to Obama and every major news outlet everyday. If someone knows how to do a macro on email where it automatically fills in the person's name in the greeting and sends the emails individually with one click, please let us know. Also a macro to autosend everyday. That way after it's first set up we don't have to do anything.
     
  9. jimbob

    jimbob ME/CFS84-XMRV+

    Messages:
    321
    Likes:
    9
    myrtle beach, s.c.
    yes, please someone set this up! It has to make a difference because they're going to get sick of seeing them and hopefully do something!
     
  10. Lynn

    Lynn Senior Member

    Messages:
    357
    Likes:
    232
    CAA Grassroots Action site

    Jimbob, what a great idea!

    I don't think we have to reinvent the wheel. At least not yet. The CAA has a Grassroots Action Center page on their site. http://www.capwiz.com/cfids/home/

    All you have to do is put your zip code in and you can get emails sent to your local media, elected officials, Secretary of Health, and the President. They have some email templates or you can write your own.

    I have used it three times and it is very easy. I would be willing to help write some email templates from our members (I warn you that I am big on benign plagiarism).

    Here is a letter I wrote in May (cobbled together from the CAA and WPI):

    I don't think they will keep it up forever because I understand it is very expensive. But we may as well use it while they have it. If we all sent one letter to all of these people each day, I think it would get our message across.

    Let's do this!

    Lynn
     
  11. alex3619

    alex3619 Senior Member

    Messages:
    12,528
    Likes:
    35,244
    Logan, Queensland, Australia
    Hi

    I like this idea in principle, but you need to be careful not to get caught with antispam legislation. You also need to consider that the CDC and everyone else will just treat you like a spammer and block your emails - all of them. On the other hand, if their spam count goes up and up and up, they will still get the message.

    bye
    Alex
     
  12. justinreilly

    justinreilly Senior Member

    Messages:
    2,496
    Likes:
    1,214
    NYC (& RI)
    This is an idea. My only problem with it is that you have to send the CAA's language which is pretty weak imo and your message gets put in the middle where they may not see it (i don't know if they make it stand out). But in the absence of having a macro set up I think it would be a good idea as a start.
     
  13. justinreilly

    justinreilly Senior Member

    Messages:
    2,496
    Likes:
    1,214
    NYC (& RI)
    Good point about the spam. I guess we could each use throw away email addresses for this so our everyday email address wouldn't get blocked.
     
  14. Lynn

    Lynn Senior Member

    Messages:
    357
    Likes:
    232
    Hi Alex,

    You don't have to use the CAA's message. You can write your own. Of course putting together a group piece is very difficult because everyone will have a different opinion about what should be said. But it probably wouldn't be too hard to put together a few key points that people could include if they choose.

    Lynn
     

See more popular forum discussions.

Share This Page