For the past few months, I occasionally have some sort of jerks or spasms when I go to bed. They don't happen when I'm sleeping, only when I'm awake. It used to be that my lower left leg would kick at the knee a few times, maybe 15 to 30 seconds apart. Then after a few weeks it was both legs at the knee. Then after a few weeks it was both legs at the hip. Sometimes it doesn't happen for a week or more. But last night was incredibly frightening. I must have had 40 or 50 of these jerks or spasms that involved my entire body over a 30-minute period. My legs, my arms, and my head would all go flying in different directions at the same time. I gasped every time at the same time, a loud intake of air. I also had some heart palpitations in between some of the jerks. I changed positions several times but that didn't help at all. At some point the jerks just stopped, and I curled up on my side and fell asleep. This morning I woke up in pain at many different spots (feet, ankles, calves, right hip, lower back, shoulders, neck). I have no idea if these areas all hurt because of all the thrashing around I did or not. I'm also having a lot of problems today with grip and balance, and at one point I almost fell because my left side contorted while I was walking and my foot didn't go on the floor when it should have. I was also so tired and slept in by three hours. Sleeping didn't make me feel any better. I'm wondering, is this a symptom of CFS? If not, does anyone have any idea what it might be? I don't know what kind of doctor I should see about this if it gets worse. I've shown several doctors video of my facial twitches and no one has any idea what they are, so I'm not much more hopeful with the twitching. Next time I should get my husband to take a video of my jerks in action, but since I don't wear PJs to bed, that could be a problem!