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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Are you sure that 1,000mg of magnesium is the maximum safe dose? It doesn't sound like that much, especially when you condiser how important magnesium is for some many processes.
GG
Most books and websites say 400mg is the highest dose, higher than this should only be taken on medical advice. So I do think 1000 mg is high. I have to stuff down 6 tablets a day to get this level in me!
I "drink" 800mg a day of magnesium. Have you looked for it in powder form? You just mix with water and drink away :Retro smile:
HiI had these very badly. Sometimes I would spring horizontally off the matress into the air! At its worst, I was hospitalised several times and had to sleep with electrodes glued on my head to see if it was epilepsy.
It wasn't.
I sometimes get brief twitches in the daytime too. I'll suddenly drop something or throw something across the room.
Now I have a doctor who told me to take magnesium, 1000mg a day (this is the maximum safe dose). You need magnesium to repair nerve damage. This illness seems to damage our nerves constantly. Now the twitching has pretty much gone. If I run out of magnesium it comes back in about 2 days.
You need to make sure you have adequate calcium, which is also important for nerves. If you don't drink/eat dairy foods it might be worth taking calcium too.
Yes, tempted to try the Klonipin. I was on it years ago for anxiety for about 4 months. Was extremely difficult to come off of. Would it get rid of the fasciculations in my muscles? Are you concerned about tolerance at all? How much are you taking? Sorry for all the questions but I need to do something soon. Mt sleep is terrible. The sleep starst are so bad I have almost whiplash from the head twitches. For me it seems the Epsom salts triggered this so I am confused. Others on the board think I may have soaked up too much of the Magnesium Sulphate at once.I was dx with nocturnal myoclonus at a sleep disorder clinic in the early 90's. Klonopin takes care of this for me but I'm going to try taking more magnesium again instead. Klonopin is making me feel drugged / sluggish the next day.
Tx .. x
Yes, tempted to try the Klonipin. I was on it years ago for anxiety for about 4 months. Was extremely difficult to come off of. Would it get rid of the fasciculations in my muscles? Are you concerned about tolerance at all? How much are you taking? Sorry for all the questions but I need to do something soon. Mt sleep is terrible. The sleep starst are so bad I have almost whiplash from the head twitches. For me it seems the Epsom salts triggered this so I am confused. Others on the board think I may have soaked up too much of the Magnesium Sulphate at once.
Zinc can be the answer for restless legs. My husband was prescribed some expensive prescription that has horrible long range effects. I googled and put him on zinc and it cured the RLS. It works especially well for older people and anyway it's good for your immune system. I don't think there's any good test that can be done, it's just trial and error. My husband had to take several zinc capsules at intervals the first night and after a couple of hours he was fine. Now he just takes his zinc morning and night.
You might try some zinc and copper. You have to take both, at different times of the day, same as magnesium and calcium.
I find that when my zinc and copper are out of balance (too much or too little of either one) I get sleep paralysis that can last for an hour or more. And when zinc is low I get RLS. All these and the jerking are inter-related, I think.
A sleep study costs $3,ooo where I live in the US, if your insurance doesn't pay for it. That's for one night.
Thanks. I will look into the Zinc. Is a serum blood test needed?Zinc can be the answer for restless legs. My husband was prescribed some expensive prescription that has horrible long range effects. I googled and put him on zinc and it cured the RLS. It works especially well for older people and anyway it's good for your immune system. I don't think there's any good test that can be done, it's just trial and error. My husband had to take several zinc capsules at intervals the first night and after a couple of hours he was fine. Now he just takes his zinc morning and night.
Actually those are the worst forms for getting absorbed, and they trigger diarrhea in pretty much everyone. Any other form should work fairly well if magnesium deficiency is causing the jerking.there is a pretty inexpensive vitacost chelated magnesium/calcium vitamin and magnesium oxide might be better absorbed