Bob wrote on another thread: We need to prepare for the upcoming StakeHolders meeting. I would ask everyone to stop all emails and phone calls to the Health agencies as we now want their attention on the StakeHolder meeting and you have all done such a great job of slamming them, they have been unable to do anything else. [...]I would ask all patients who can, to do some homework on who and what we should have at the meeting. Such as the expert clinicians in the world of ME/CFS, Pharma companies (we can select a few and begin writing to them to attend) Insurance Co's. and more.We as patients need to be prepared and educated for the best possible meeting. So please take a rest and then begin doing the Homework. [...]And again my humble thank you to the patients for your support. Bob asked me to set up a new thread for discussion so here it is but I must confess to knowing zippo about such meetings (I'm just a Brit!) and I'm assuming Bob will be having a bit of a lie down and then a steak dinner. I'm hoping someone knowledgeable will step in and say something about the meeting's scope, when it is (if we know) and so forth.