Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Bob Miller on Hunger Strike: Send This 1-Minute Email to Get FDA Approval for Ampligen

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Feb 1, 2013.

  1. garcia

    garcia Aristocrat Extraordinaire

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  2. RUkiddingME

    RUkiddingME Senior Member

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  3. Ember

    Ember Senior Member

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    Write to Amy Dockser Marcus at amy.marcus@wsj.com.

    edit: Oops. I see now that this address didn't work for SpecialK82.
     
  4. caledonia

    caledonia

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    Who is the Sponsor and where is this Webcast? I would like to see it. Probably wouldn't hurt to send a copy of it to the journalists if that's part of our complaint.
     
  5. Sasha

    Sasha Fine, thank you

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    I think the sponsor was Hemispherx. I don't know if the webcast was posted.
     
  6. dannybex

    dannybex Senior Member

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    I don't think it was...weren't the circuits (or whatever you call 'em) overloaded, so portions of the webcast went down several times?

    I have a feeling the decision has been made, and it's not a good one. Perhaps people should be swamping Hemipherx with emails rather than the FDA?
     
  7. dannybex

    dannybex Senior Member

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  8. Kati

    Kati Patient in training

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    And dannybex, what do you want us to tell Hemispherx?
     
  9. dannybex

    dannybex Senior Member

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    Well, I'd like them to be more honest in the future. They've had a terrible track record when it comes to being open and honest with the public and with patients -- lying in June 2009 suggesting that the FDA was close to approving Ampligen is just one example of many. They've implied they didn't have enough funds to run a new trial that the FDA asked for three years ago, even though the stock went up from something like 30 cents to over 4 DOLLARS in June of that year. There are records of the executives selling their own shares of Hemispherx stock -- something that would only cause the stock to go down -- why did they not BUY more stock? On and on and on...

    I hope Bob will reconsider and stop his hunger strike, for his own sake.
     
  10. Kati

    Kati Patient in training

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    Certainly Hemispherx is in hot water as they are dealing with investors's class action suit. I really wish we were a credible illness and that a respectable (and rich) pharma company to do drug development, clinical trials and get drugs approved at long last!
     

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