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Lessons from ME/CFS: Finding Meaning in the Suffering
If you're aware of my previous articles here at Phoenix Rising then it's pretty clear that I don't generally spend my time musing upon the philosophy of the disease. I find it better to spend my time reading research and trying my best to break it down to its core elements and write...
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Bob Miller on Hunger Strike: Send This 1-Minute Email to Get FDA Approval for Ampligen

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Feb 1, 2013.

  1. garcia

    garcia Aristocrat Extraordinaire

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  2. RUkiddingME

    RUkiddingME Senior Member

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  3. Ember

    Ember Senior Member

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    Write to Amy Dockser Marcus at amy.marcus@wsj.com.

    edit: Oops. I see now that this address didn't work for SpecialK82.
  4. caledonia

    caledonia

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    Who is the Sponsor and where is this Webcast? I would like to see it. Probably wouldn't hurt to send a copy of it to the journalists if that's part of our complaint.
  5. Sasha

    Sasha Fine, thank you

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    I think the sponsor was Hemispherx. I don't know if the webcast was posted.
  6. dannybex

    dannybex Senior Member

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    I don't think it was...weren't the circuits (or whatever you call 'em) overloaded, so portions of the webcast went down several times?

    I have a feeling the decision has been made, and it's not a good one. Perhaps people should be swamping Hemipherx with emails rather than the FDA?
  7. dannybex

    dannybex Senior Member

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  8. Kati

    Kati Patient in training

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    And dannybex, what do you want us to tell Hemispherx?
  9. dannybex

    dannybex Senior Member

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    Well, I'd like them to be more honest in the future. They've had a terrible track record when it comes to being open and honest with the public and with patients -- lying in June 2009 suggesting that the FDA was close to approving Ampligen is just one example of many. They've implied they didn't have enough funds to run a new trial that the FDA asked for three years ago, even though the stock went up from something like 30 cents to over 4 DOLLARS in June of that year. There are records of the executives selling their own shares of Hemispherx stock -- something that would only cause the stock to go down -- why did they not BUY more stock? On and on and on...

    I hope Bob will reconsider and stop his hunger strike, for his own sake.
  10. Kati

    Kati Patient in training

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    Certainly Hemispherx is in hot water as they are dealing with investors's class action suit. I really wish we were a credible illness and that a respectable (and rich) pharma company to do drug development, clinical trials and get drugs approved at long last!

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