1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
Discuss the article on the Forums.

Bob Miller on Hunger Strike: Send This 1-Minute Email to Get FDA Approval for Ampligen

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Feb 1, 2013.

  1. garcia

    garcia Aristocrat Extraordinaire

    Messages:
    934
    Likes:
    103
    London, UK
  2. RUkiddingME

    RUkiddingME Senior Member

    Messages:
    148
    Likes:
    191
    Canada
  3. Ember

    Ember Senior Member

    Messages:
    1,728
    Likes:
    1,782
    Write to Amy Dockser Marcus at amy.marcus@wsj.com.

    edit: Oops. I see now that this address didn't work for SpecialK82.
     
  4. caledonia

    caledonia

    Messages:
    2,983
    Likes:
    1,599
    Cincinnati, OH, USA
    Who is the Sponsor and where is this Webcast? I would like to see it. Probably wouldn't hurt to send a copy of it to the journalists if that's part of our complaint.
     
  5. Sasha

    Sasha Fine, thank you

    Messages:
    8,454
    Likes:
    7,548
    UK
    I think the sponsor was Hemispherx. I don't know if the webcast was posted.
     
  6. dannybex

    dannybex Senior Member

    Messages:
    2,253
    Likes:
    562
    Seattle
    I don't think it was...weren't the circuits (or whatever you call 'em) overloaded, so portions of the webcast went down several times?

    I have a feeling the decision has been made, and it's not a good one. Perhaps people should be swamping Hemipherx with emails rather than the FDA?
     
  7. dannybex

    dannybex Senior Member

    Messages:
    2,253
    Likes:
    562
    Seattle
  8. Kati

    Kati Patient in training

    Messages:
    2,073
    Likes:
    1,618
    And dannybex, what do you want us to tell Hemispherx?
     
  9. dannybex

    dannybex Senior Member

    Messages:
    2,253
    Likes:
    562
    Seattle
    Well, I'd like them to be more honest in the future. They've had a terrible track record when it comes to being open and honest with the public and with patients -- lying in June 2009 suggesting that the FDA was close to approving Ampligen is just one example of many. They've implied they didn't have enough funds to run a new trial that the FDA asked for three years ago, even though the stock went up from something like 30 cents to over 4 DOLLARS in June of that year. There are records of the executives selling their own shares of Hemispherx stock -- something that would only cause the stock to go down -- why did they not BUY more stock? On and on and on...

    I hope Bob will reconsider and stop his hunger strike, for his own sake.
     
  10. Kati

    Kati Patient in training

    Messages:
    2,073
    Likes:
    1,618
    Certainly Hemispherx is in hot water as they are dealing with investors's class action suit. I really wish we were a credible illness and that a respectable (and rich) pharma company to do drug development, clinical trials and get drugs approved at long last!
     

See more popular forum discussions.

Share This Page