Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Feb 1, 2013.
View the Post on the Blog
View the Post on the Blog
Dreambirdie posted this message recently with an additional, important, urgent and quick action to take if you're in the US:
Bob posted this on Facebook today:"Patients who are able can call NBC News at 212-664-4444 and comment on the story below. Be sure to tell the person who answers why you are calling, they will put you through to a comment line where you can request for them to plesae cover this important News story Nationally, be sure to tell them where you are calling from.Many thanks to All who are helping, my wife and I could not do this without your help and support.Kindly, Bob"THIS IS THE STORY he is referring to: http://www.nbcnews.com/id/50666787
Finally blundered my way to Bob's Facebook page for those who would like to keep up to date with him:
Thanks for the template.
Sent the e-mails - hope something good comes of his efforts.
I think you've got Mark to thank for that!
someone commenting on Bob Miller's FB page said that she has been re-directed to send an email to NBC when she called the phone number. The email is: email@example.com
Thanks, Nico - I'll post that on the thread I started on the NBC thing.
Done and dusted
and for K2
She'll be Apples
No idea what that means but it sounds promising!
dont worry things will work out,
might take a bit of time tho
dont worry be happy
i know it is a big call
Please help non-native speaker to send this e-mail. Should I add "Dear Sirs and Madams" at the beginning?
Hi Tally - I didn't put anything at all at the beginning of mine!
Bob posted this on his Facebook page a few hours ago:
A fast thank you for all the support, no matter the decision we must work together just as you all have been doing the past few days. Maybe it's the lack of food, but I have not seen our community this United for some time. You All are Awesome.
Last evening I emailed NBC (using the address Nico provided) to ask that the story produced by their Reno affiliate be carried nationally.
Hi, am I correct in thinking the second Ampligen FDA meeting is today or is it monday? Thank you.
We've been told for a long time to expect a decision to be announced around Feb 2nd which of course is today and weirdly is a Saturday! That's all I know - anybody know any more?
Presumably the FDA can push that back if they feel they need more time so let's just keep piling on the pressure until we hear a decision.
Has backing this tactic really been thought through, do we want to be promoting the message that hunger strike is a legitimate campaigning tool. I fully support cause and publicising the supporting evidence but the decision should be based on the strength of the evidence alone not coerced under threat of self harm. It may well even backfire as decision makers would not want to risk it appearing as if such actions are effective.
Thanks for the reply Sasha I'm glad I got the right day and yes a Saturday at the weekend, a day when the media are less active and news can be more easily deflected.
wdb, I think Bob is very ill and probably needs Ampligen to have any function. In that circumstance I can understand why he would go on hunger strike to make a point for the FDA to approve it to himself and others. The drug is probably very hard to get and he likely has to travel a long way if he doesn't live locally to where it can be administered. I expect this is a short term protest as the decision is due any moment...we hope!
Hi wbd - that's an interesting point. I guess we'll all have our own personal perspective on this.
For me, I think that what Bob is doing underlines the seriousness of the situation. People don't go on hunger strike for trivial reasons and our big problem with ME has been the perception of our disease as trivial.
It's easier for organisations to make self-serving and poor decisions when they're not being scrutinised. A hunger strike has a good chance of getting media attention onto this and getting people asking the FDA difficult questions. I think it's going to help to get a big spotlight shining on the FDA.
You can also try a Google Site Search
Separate names with a comma.