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BMJ: US Editors Choice: Getting clinical guidelines right

Discussion in 'General ME/CFS News' started by Firestormm, Sep 21, 2013.

  1. Firestormm

    Firestormm Guest

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    Especially interesting, perhaps, given the current climate:
    jspotila, Esther12, Bob and 2 others like this.
  2. Sasha

    Sasha Fine, thank you

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    Wow - look at the red flags identified in that paper that are present in the IOM's GWI panel (my bold), and those are only the ones that I know of:

    Box 1: Red flags that should raise substantial skepticism among guideline readers (and medical journals)

    • Sponsor(s) is a professional society that receives substantial industry funding;
    • Sponsor is a proprietary company, or is undeclared or hidden
    • Committee chair(s) have any financial conflict*
    • Multiple panel members have any financial conflict*
    • Any suggestion of committee stacking that would pre-ordain a recommendation regarding a controversial topic
    • No or limited involvement of an expert in methodology in the evaluation of evidence
    • No external review
    • No inclusion of non-physician experts/patient representative/community stakeholders
    Nielk, medfeb - interesting, and the IOM is cited in that paper as being big on good process for guidelines (!).
    jspotila, Valentijn, Bob and 4 others like this.
  3. Firestormm

    Firestormm Guest

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    I guess one of my concerns with this will be that GET and CBT are 'scientifically sound' according to their proponents who are - unfortunately - listened to; and until something better comes along with the 'same rigour' behind it - we could be stuck in the US right where we are in the UK with 'management strategies' for ME. But, I think it also gives accord to the need for consultation before guidelines are published - though I haven't read the paper it alludes to - and this would include (I sincerely hope) disease experts, healthcare experts, patients and patient representatives.

    Really crappy night. So I'm not doing anything more today... except trying to :sleep:
  4. Firestormm

    Firestormm Guest

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  5. Snow Leopard

    Snow Leopard Senior Member

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    Sasha

    I think this is a key point to push with the HHS/IOM and may well gain more traction.
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  6. Sasha

    Sasha Fine, thank you

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    Thanks - I'll tag it for Neilk and medfeb.
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  7. medfeb

    medfeb Senior Member

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    Thanks for the heads up on that, Sasha
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  8. Esther12

    Esther12 Senior Member

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    Firestormm likes this.
  9. Desdinova

    Desdinova Senior Member

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    So what Group(s) or Organization(s) does Weasle & Whitewash and those belonging to their school of thought belong to? Because I'll bet a dollar to a donut that they'll try to insert themselves Professionaly into the development process of said proposed group and guidelines it uses.
  10. jspotila

    jspotila Senior Member

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    Guido den Broeder and Sasha like this.
  11. Firestormm

    Firestormm Guest

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    No problem Jennie. I might actually find the time to read it myself soon :D
  12. Guido den Broeder

    Guido den Broeder *****

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    Interesting article. If I count right,, the Dutch guideline on CFS (CBO, 2013) scores 8 out of 8 red flags.

    But evidence-based guidelines, defined as is, remain primitive no matter what. We need model-based guidelines.
    Valentijn likes this.

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