Phoenix Rising: The Gift That Keeps on Giving All Year Long
This holiday season Jody Smith turns her eyes to the people of Phoenix Rising and gives thanks for you all ...
Discuss the article on the Forums.

BMJ: US Editors Choice: Getting clinical guidelines right

Discussion in 'General ME/CFS News' started by Firestormm, Sep 21, 2013.

  1. Firestormm

    Firestormm Guest

    Messages:
    5,823
    Likes:
    6,018
    Cornwall England
    Especially interesting, perhaps, given the current climate:
     
    jspotila, Esther12, Bob and 2 others like this.
  2. Sasha

    Sasha Fine, thank you

    Messages:
    15,142
    Likes:
    36,305
    UK
    Wow - look at the red flags identified in that paper that are present in the IOM's GWI panel (my bold), and those are only the ones that I know of:

    Box 1: Red flags that should raise substantial skepticism among guideline readers (and medical journals)

    • Sponsor(s) is a professional society that receives substantial industry funding;
    • Sponsor is a proprietary company, or is undeclared or hidden
    • Committee chair(s) have any financial conflict*
    • Multiple panel members have any financial conflict*
    • Any suggestion of committee stacking that would pre-ordain a recommendation regarding a controversial topic
    • No or limited involvement of an expert in methodology in the evaluation of evidence
    • No external review
    • No inclusion of non-physician experts/patient representative/community stakeholders
    Nielk, medfeb - interesting, and the IOM is cited in that paper as being big on good process for guidelines (!).
     
    jspotila, Valentijn, Bob and 4 others like this.
  3. Firestormm

    Firestormm Guest

    Messages:
    5,823
    Likes:
    6,018
    Cornwall England
    I guess one of my concerns with this will be that GET and CBT are 'scientifically sound' according to their proponents who are - unfortunately - listened to; and until something better comes along with the 'same rigour' behind it - we could be stuck in the US right where we are in the UK with 'management strategies' for ME. But, I think it also gives accord to the need for consultation before guidelines are published - though I haven't read the paper it alludes to - and this would include (I sincerely hope) disease experts, healthcare experts, patients and patient representatives.

    Really crappy night. So I'm not doing anything more today... except trying to :sleep:
     
  4. Firestormm

    Firestormm Guest

    Messages:
    5,823
    Likes:
    6,018
    Cornwall England
  5. Snow Leopard

    Snow Leopard Hibernating

    Messages:
    4,022
    Likes:
    8,942
    South Australia
    Sasha

    I think this is a key point to push with the HHS/IOM and may well gain more traction.
     
    Sasha likes this.
  6. Sasha

    Sasha Fine, thank you

    Messages:
    15,142
    Likes:
    36,305
    UK

    Thanks - I'll tag it for Neilk and medfeb.
     
    Nielk likes this.
  7. medfeb

    medfeb Senior Member

    Messages:
    428
    Likes:
    1,571
    Thanks for the heads up on that, Sasha
     
    Sasha likes this.
  8. Esther12

    Esther12 Senior Member

    Messages:
    7,424
    Likes:
    20,884
    Firestormm likes this.
  9. Desdinova

    Desdinova Senior Member

    Messages:
    276
    Likes:
    133
    USA
    So what Group(s) or Organization(s) does Weasle & Whitewash and those belonging to their school of thought belong to? Because I'll bet a dollar to a donut that they'll try to insert themselves Professionaly into the development process of said proposed group and guidelines it uses.
     
  10. jspotila

    jspotila Senior Member

    Messages:
    1,098
    Likes:
    780
    Guido den Broeder and Sasha like this.
  11. Firestormm

    Firestormm Guest

    Messages:
    5,823
    Likes:
    6,018
    Cornwall England
    No problem Jennie. I might actually find the time to read it myself soon :D
     
  12. Interesting article. If I count right,, the Dutch guideline on CFS (CBO, 2013) scores 8 out of 8 red flags.

    But evidence-based guidelines, defined as is, remain primitive no matter what. We need model-based guidelines.
     
    Valentijn likes this.

See more popular forum discussions.

Share This Page