New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
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BMJ: US Editors Choice: Getting clinical guidelines right

Discussion in 'General ME/CFS News' started by Firestormm, Sep 21, 2013.

  1. Firestormm

    Firestormm Guest

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    Especially interesting, perhaps, given the current climate:
     
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  2. Sasha

    Sasha Fine, thank you

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    Wow - look at the red flags identified in that paper that are present in the IOM's GWI panel (my bold), and those are only the ones that I know of:

    Box 1: Red flags that should raise substantial skepticism among guideline readers (and medical journals)

    • Sponsor(s) is a professional society that receives substantial industry funding;
    • Sponsor is a proprietary company, or is undeclared or hidden
    • Committee chair(s) have any financial conflict*
    • Multiple panel members have any financial conflict*
    • Any suggestion of committee stacking that would pre-ordain a recommendation regarding a controversial topic
    • No or limited involvement of an expert in methodology in the evaluation of evidence
    • No external review
    • No inclusion of non-physician experts/patient representative/community stakeholders
    Nielk, medfeb - interesting, and the IOM is cited in that paper as being big on good process for guidelines (!).
     
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  3. Firestormm

    Firestormm Guest

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    I guess one of my concerns with this will be that GET and CBT are 'scientifically sound' according to their proponents who are - unfortunately - listened to; and until something better comes along with the 'same rigour' behind it - we could be stuck in the US right where we are in the UK with 'management strategies' for ME. But, I think it also gives accord to the need for consultation before guidelines are published - though I haven't read the paper it alludes to - and this would include (I sincerely hope) disease experts, healthcare experts, patients and patient representatives.

    Really crappy night. So I'm not doing anything more today... except trying to :sleep:
     
  4. Firestormm

    Firestormm Guest

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  5. Snow Leopard

    Snow Leopard Hibernating

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    Sasha

    I think this is a key point to push with the HHS/IOM and may well gain more traction.
     
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  6. Sasha

    Sasha Fine, thank you

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    Thanks - I'll tag it for Neilk and medfeb.
     
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  7. medfeb

    medfeb Senior Member

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    Thanks for the heads up on that, Sasha
     
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  8. Esther12

    Esther12 Senior Member

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  9. Desdinova

    Desdinova Senior Member

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    So what Group(s) or Organization(s) does Weasle & Whitewash and those belonging to their school of thought belong to? Because I'll bet a dollar to a donut that they'll try to insert themselves Professionaly into the development process of said proposed group and guidelines it uses.
     
  10. jspotila

    jspotila Senior Member

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  11. Firestormm

    Firestormm Guest

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    No problem Jennie. I might actually find the time to read it myself soon :D
     
  12. Interesting article. If I count right,, the Dutch guideline on CFS (CBO, 2013) scores 8 out of 8 red flags.

    But evidence-based guidelines, defined as is, remain primitive no matter what. We need model-based guidelines.
     
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