Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Blue Ribbon Foundation: new ME/CFS 5 hour online continuing education course

Discussion in 'General ME/CFS News' started by AndyPR, Oct 6, 2017.

  1. AndyPR

    AndyPR RIP PR :'(

    From their Facebook post, https://www.facebook.com/CFSDocumentary/posts/1646671338697048
     
    CedarHome, ahimsa, Jan and 15 others like this.
  2. duncan

    duncan Senior Member

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    Alternatively, interested professionals could just audit this forum....
     
    Isaiah 58:11 likes this.
  3. Invisible Woman

    Invisible Woman Senior Member

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    I'm a suspicious creature :cautious: what kinda stuff are they proposing to teach?

    BPS?
    The realities of living with ME?
    Drawing circles with magic words written inside?
     
    Jan, Wonko and duncan like this.
  4. Diwi9

    Diwi9 Senior Member

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    The film "Forgotten Plague" focusses on the medical model.
     
    ahimsa, MEMum, Valentijn and 3 others like this.
  5. AndyPR

    AndyPR RIP PR :'(

    http://me-pedia.org/wiki/The_Blue_Ribbon_Foundation
    http://me-pedia.org/wiki/Forgotten_Plague
     
    ahimsa, Jan, MEMum and 4 others like this.
  6. echobravo

    echobravo Keep searching, the answer is out there

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  7. Joh

    Joh Inactivist

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    It's also possible to order the DVD from the US. The sender on the package was a woman with the same last name, so I suspected it might be Ryan's mom - what I found really charming, that she supports him like this. :)
     
  8. echobravo

    echobravo Keep searching, the answer is out there

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    Thanks @Joh for letting me know.

    Support and understanding from family would reduce one source of stress, but my experience is that it is so hard for them to fathom the severity of this condition. And it just creates stress & frustration to try to make them understand the effects of ME..

    Sometimes I am thinking, even if they are not able to be of help, couldn’t they at least take 1 hour from their time to read up in ME, so at least I didn’t have to justify myself, debunk uninformed suggestions etc. It seems though, as I spend more and more time in bed sleeping or listless, that it slowly sinks in that something must be wrong.
     
    Jan, AndyPR, TiredSam and 2 others like this.

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