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Blood Working Group Revealed

Discussion in 'XMRV Research and Replication Studies' started by Cort, Oct 29, 2010.

  1. Cort

    Cort Phoenix Rising Founder

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  2. Lynn

    Lynn Senior Member

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    Blood Working Group PDF

    Thanks for this Cort. I created a PDF file for those people who don't have powerpoint.

    View attachment XMRV_SRWG_REDS-II_P&.pdf

    If you like you can share it with the other group!

    Lynn
  3. Cort

    Cort Phoenix Rising Founder

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    You are good! I was wondering how to do that.
  4. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    I didn't know you can do that. Not sure I have a need to know, especially if it is complex, but perhaps Lynn can share the details?

    GG
  5. Sasha

    Sasha Fine, thank you

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    Here are the group members, from one of the slides:

    NHLBI - Simone Glynn - Chair
    HHS - Jerry Holmberg - Co-chair
    NIH - Harvey Alter
    ABC - Celso Bianco
    CDC - William Bower
    BSRI - Michael Busch
    ARC - Roger Dodd
    FDA - Jay Epstein
    FDA - Diane Gubernot
    NIH - Eleanor Hanna
    CDC- Michael Hendry
    MVRBC - Louis Katz
    AABB - Steven Kleinman
    CDC - Stephan Monroe
    NCI - Francis Ruscetti
    ARC - Susan Stramer
    BSRI - Leslie Tobler
    CFIDS - Suzanne Vernon

    Testing Labs - Investigators
    BSRI - Graham Simmons
    CDC - Bill Switzer, Walid Heneine
    FDA - Indira Hewlett
    FDA - Shyh-Ching Lo
    NCI - John Coffin
    WPI - Judy Mikovits
  6. eric_s

    eric_s Senior Member

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    I LOVE to see Alter, Ruscetti, Lo and Mikovits in there. Those are the right people. No wonder some others (i won't mention names here) are firing on the XMRV positive studies. They're outside of where things are really happening. Now let's just hope things turn out well for us. But if all of the names i've mentioned above are part of this group and they still seem positive, with all the knowledge this group must have by now, i think things are looking pretty good. Also Coffin is part of it, and even though he mentioned the possibility of contamination, he said something like "we can be fairly optimistic XMRV is playing a role" in September, i think. One thing i have to say... the USA really knows how to do something. I like the concept how they established this group and are going about it. Where is Germany, France, the UK? They're big countries too. But they seem sleeping, passive, without a plan... sorry :angel:
  7. Sasha

    Sasha Fine, thank you

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    So am I sorry, Eric! The UK government and its medical establishment have really let ME patients down and in doing so, seem happy to put the rest of the nation's health at risk by ignoring a retroviral threat. I am ashamed of them. We patients try and try and try to put pressure on them but we get stonewalled. I really feel as though I am living in an Orwell novel.
  8. Jemal

    Jemal Senior Member

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    Thanks for posting this!

    I have wondered myself what the European countries are doing... we don't seem to be as organised as the US at the moment. But the research in the US wasn't really organised/coordinated until 2010 I guess, so there might be hope for Europe still. If this turns into the health crisis I think it will, they will have to allocate funds and organise.
  9. ukxmrv

    ukxmrv Senior Member

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    Something I'm being trying to find out about Europe, do we have any murine retroviral experts here at all? (i.e. a la the wonderful Sandra Ruscetti). I've been looking but cannot find one.
  10. Berthe

    Berthe Senior Member

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    Hi ukxmrv,

    I certainly hope that a lot of HIV/AIDS specialists will become interested an active in this area in Europe, once the word is out.

    Love,
    Berthe

    http://www.onwilliglichaam.blogspot.com
  11. natasa778

    natasa778 Senior Member

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    As far as UK researchers, the "HIV/AIDS specialists" are currently busy farting on about contamination. Let's hope the clinicians are more humane.
  12. Tuha

    Tuha Senior Member

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    I am also really wondering what we are doing here in Europe. I somewhere read that prof de Meirleir wanted to bring cfs/xmrv topic to the European Parliament. but i dont know if he tried it.
    I think this would be the best possibility how to get a big attention. EU has 27 countries and more than 500 mil. habitants and has a lot of money. if we would get this topic on the EU level.....I think its our big chance. I tried to contact ESME if they try something but they didnt answer me.
    do someone know an european group which try to move the things in this direction? - i didnt find anything
  13. August59

    August59 Daughters High School Graduation

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    Does anyone know what the status of the BWG is as far as what "Phase" their at? I thought I remember Cort mentioning a status awhile back, but I'm not sure.
  14. Lynn

    Lynn Senior Member

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    I have Adobe Acrobat Pro which allows me to convert most file types to a PDF. It is very easy if you have the right software. I am glad to do it any time.

    Lynn
  15. mezombie

    mezombie Senior Member

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    At the CFSAC meeting, the NHLBI Program Director reported that the BWG was in Phase 2, the optimal preparation of a sample. She said she expected results from this phase in early November.
  16. pictureofhealth

    pictureofhealth XMRV - L'Agent du Jour

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    I think the Spanish HIV/AIDS specialists are interested. Think Judy M may have been in contact with them. But can't remember who/how/why/where etc! UK will probably be the last to shift.
  17. Jemal

    Jemal Senior Member

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  18. LJS

    LJS Insert Witty Comment Here

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    They issued this because the UK baned the donation of blood from ME/CFS patients on Nov. 1st
  19. kermit frogsquire

    kermit frogsquire *****

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    Correspondence with our two main retrovirologists (McClure and Bishop) has revealed that neither is currently doing any studies on XMRV and ME. Myra McClure even stated that she does not intend on doing any more work on it at all. Short sighted comes to mind.

    The problem in the UK is we have an evil genius Simon Wessely with ultimate power over the government and the press through the Science Media Centre, thank goodness the US doesnt have such a powerful player - Bill Reeves is your main evil denialist!
  20. Cort

    Cort Phoenix Rising Founder

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    I would not take Bishop to task, however. Even tho her study was negative she did provide a big lead for Dr. Mikovits.

    Even when he lead the program Bill Reeves was a largely marginalized figure. Wessely et al got the Oxford definition in there; Reeves tried with the Empirical Definition and nobody budged - a very different story, indeed.

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