Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

Blood Products Advisory Committee Meeting Announcement (BPAC) December 14-15, 2010

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Otis, Nov 26, 2010.

  1. jspotila

    jspotila Senior Member

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    According to an email I received today from the Office of Communication, Outreach and Development at FDA is that this meeting will NOT be broadcast live over the web. Boo.
     
  2. George

    George waitin' fer rabbits

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    I'll second that BOOO and heck I'll throw in a HISSSSSSS. (grins) Thanks for posting the info Jspotila.
     
  3. RivkaRivka

    RivkaRivka Senior Member

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    i was told the same thing when i called yesterday.
     
  4. urbantravels

    urbantravels disjecta membra

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    waiting...waiting...waiting...

    so what will it be?...prince?

    IMG_20101213_192132.jpg

    or frog?
     
  5. pictureofhealth

    pictureofhealth XMRV - L'Agent du Jour

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    Will there be any tweeters and twits attending?

    Or maybe I'm just impatient and will have to wait till Friday for the CAA.

    I guess I just want to know the TRUTH, not some watered down, patient 'friendly' PR version this time.
     
  6. Francelle

    Francelle Senior Member

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    Is Mindy or any other PR person going to this BWG meeting - if so, perhaps we'll hear a reasonably balanced perspective from them?
     
  7. Esther12

    Esther12 Senior Member

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    Surely we'll get news of this? Anyone know how though?
     
  8. Esther12

    Esther12 Senior Member

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    So we're waiting for 1-3:30 their time.

    That's about 9-10:30 UK time, right?

    Maybe I should restrain my googling til then. I might lie back and listen to some music.
     
  9. bullybeef

    bullybeef Senior Member

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  10. Esther12

    Esther12 Senior Member

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    oops... thanks for that bullybeef.

    On the plus side, we're now three hours closer to maybe knowing something new (if it get put on-line somewhere).
     
  11. bullybeef

    bullybeef Senior Member

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    North West, England, UK
  12. Cort

    Cort Phoenix Rising Founder

    I'm parked on Twitter to see what shows up

    From Khaly Castles blog

    http://cfsuntied.com/blog2/2010/12/14/xmrv-in-the-blood-supply-deemed-an-acceptable-risk/


    No donor screening for XMRV from the FDA. (I would have been surprised actually - I think they think they'll know soon enough about how to find the virus - then they'l make their decision).

     
  13. Esther12

    Esther12 Senior Member

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    Good to know.

    I'm off to cook dinner, but will be checking in regularly.
     
  14. Cort

    Cort Phoenix Rising Founder

    Is that Dr. Lombardi with Dr. Mikovits?? It looks like they are front and center - a good sign :). I see Wanda! :) I think the woman in green she's talking to is the rep from the NIAID from the CFS Working Group. It could be Dennis Mangan next to them. Do I see a camera? Are they taping this?

    [​IMG]

    This is from http://plixi.com/p/62953856
     
  15. Cort

    Cort Phoenix Rising Founder

    From ME/CFS Forums

    Nothing startling here - they looked a different storage scenarios in 4 patients (only 4?) - then found who found what - that's the key part: did all the labs get the same results when they tested the sample?

    Only four samples????
     
  16. Cort

    Cort Phoenix Rising Founder

    Patient advocate makes good with Nancy Klimas :cool:

    [​IMG]
     
  17. Esther12

    Esther12 Senior Member

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    Who knows how long it would have taken with more!
     
  18. Cort

    Cort Phoenix Rising Founder

    :rolleyes::rolleyes::rolleyes::rolleyes::rolleyes:

    I think Lo/Alter are up next - a most important presentation :eek::eek:

    Have they definitively determined where their mouse sequences came from? Mouse or man? Dr LeGrice said that was the next step for them. George and I just talked to retrovirologist who really worried about the Alter findings - because they were closer in sequence to endogenous retroviruses than XMRV. He would have expected the opposite - that they would have differed somewhat from XMRV and be further from mouse DNA. I had not heard that before.

    This is critical for them....They did one contamination test but didn't do another more specific one. IF they can show their gene sequences have human DNA at the end of them they are in good shape...(ie if they were integrated into the human DNA instead of floating around in the blood)
     
  19. urbantravels

    urbantravels disjecta membra

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    I'm confused. What is that statement in Post #32, where does it come from, and why is it posted in advance of the meeting where the evidence is to be presented and the subject discussed?
     
  20. Cort

    Cort Phoenix Rising Founder

    Here's the agenda by the way"

     

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