1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
A disease with two faces? Re-naming ME/CFS
Persuasion Smith covers the bases on the misleading and disreputable name for our disease we've all been saddled with ...
Discuss the article on the Forums.

Blog: Discussion of Suzanne Vernon's Response to Criticisms

Discussion in 'Institute of Medicine (IOM) Government Contract' started by NotAllInMyHead, Oct 8, 2013.

  1. readyforlife

    readyforlife Senior Member

    Messages:
    137
    Likes:
    135
    I start to second guess my self and think well MAYBE with the right panel we won't get screwed over. But one thing keeps bring me back to reality and that's my woman's intuition. Your statement below is something that has been on my mind for awhile now and keeps me from believing that they wont screw us over again. Why would the IOM come up with a criteria that our specialist, doctors and advocates/patients agree with, when it will just shoot them in the foot regarding their definition for the Gulf War Veterans.

    This would mean that if they created a criteria bettter than the CCC or ICCC-ME, it would in affect overturn their Gulf War Veterans ruling from GWI to CMI.
     
    Roy S and parvofighter like this.
  2. readyforlife

    readyforlife Senior Member

    Messages:
    137
    Likes:
    135
    Does anyone know if the Gulf War Veterans ever tried legal action to get the IOM contract stopped?
     
  3. Andrew

    Andrew Senior Member

    Messages:
    1,977
    Likes:
    1,267
    Los Angeles, USA
    Question: Why would someone turn to a group of inexperienced illness criteria authors (IOM) who failed miserably on their only previous attempt, instead of accepting the advice of the actual experts?

    Answer: From a business, medical, or humanitarian point of view, there is zero justification.
     
  4. alex3619

    alex3619 Senior Member

    Messages:
    7,659
    Likes:
    12,420
    Logan, Queensland, Australia
    [Putting on an HHS/IOM black hat] But this group will be a different group of experts, so criticism at the last group is not valid here. Trust us. [Taking black hat off]
     
    Delia, Valentijn and justinreilly like this.
  5. Andrew

    Andrew Senior Member

    Messages:
    1,977
    Likes:
    1,267
    Los Angeles, USA
    And my reply is that there will not be a different group of experts in charge. There will be no experts in charge. Instead, there will be the same group of non-experts (the IOM) in charge. And any expert advice will be sifted and synthesized by them, just as it was the last time.
     
    Valentijn likes this.
  6. Chris

    Chris Senior Member

    Messages:
    578
    Likes:
    176
    Victoria, BC
    It is a shame that there are now so many threads on this key issue--go to the thread "Seeking an Injunction against HHS and IOM" to see the key evidence Hip has uncovered of a close link between an insurance co. involved in disability and the IOM. Chris
     
  7. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

    Messages:
    2,490
    Likes:
    1,175
    NYC (& RI)
    I have sent another email to CAA

     
  8. Nielk

    Nielk

    Messages:
    5,446
    Likes:
    5,873
    Queens, NY
    There is something you can do if you don't like or feel comfortable with what is happening with the HHS/IOM contract. Your action will make a difference. Every letter, e-mail, phone call, signing of petition matters. They all get read and there is power in quantity.

    If you would like HHS to cancel the IOM contract, please take action. Please write to your representatives in congress HERE. You can sign the petition to stop the IOM contract HERE. The petition in support of the expert's letter is HERE.
     

See more popular forum discussions.

Share This Page