When the 'Holiday Season' Is No Holiday at all for Those With ME/CFS
Is December getting to you? Jody Smith shares some thoughts on some of the struggles that all too often attend this time of year ...
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Blog/article: Dear Health Care Professional

Discussion in 'General ME/CFS News' started by Rrrr, May 12, 2016.

  1. Rrrr

    Rrrr Senior Member

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    A new blog/article to read!

    https://speakupaboutme.wordpress.com/2016/05/12/dear-healthcare-professional/

    "We have seen all sorts of comments by healthcare professionals about patients with ME (myalgic encephalomyelitis) and what is “really” wrong with them. These are just a few comments (and what is implied by those comments): They just don’t want to work (they want to be on disability, they stand to gain from disability), are bored (so they spend their time imagining symptoms), can’t cope with everyday stress (they need psychological help), don’t exercise (and are deconditioned), are fat (and deconditioned), don’t want to be responsible for themselves (they want to go on disability and live an easy life), want stimulants, narcotics, etc (they are drugseekers), want disabled parking tags (because disability is a perk).
    Dear Healthcare Professionals: Comments about patients with ME (myalgic encephalomyelitis) such as those made by healthcare professionals like you are painful. I hope this post helps you understand some of our pain and frustration.... [The rest of the article is found on this website:
    https://speakupaboutme.wordpress.com/2016/05/12/dear-healthcare-professional ]
     
  2. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Toronto, Canada
    Invalidated trauma deepens trauma.

    When the healthcare system denies our biological symptoms, and effectively blames us, the betrayal compounds the trauma of the illness.
     
  3. meandthecat

    meandthecat Senior Member

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    West country UK
    Much of the discrimination is silent, the abuse is characterised by neglect and facilitated by avoidance and deception.

    Has the importance of the doctor/patient relationship gone the same way as work/life balance; Did it ever exist or was it a convenient fiction embedded within a traditional role now floundering?

    Words are the tip of an iceberg............
     
    Justin30 and rosie26 like this.
  4. GreyOwl

    GreyOwl Dx: strong belief system, avoidance, hypervigilant

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    That was such an incredibly powerful blog.
     
    meandthecat likes this.

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