The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Blog:6 Signs of Chronic Fatigue Syndrome and Unusual Steps to Deal With It

Discussion in 'General ME/CFS News' started by Webdog, Mar 23, 2017.

  1. Webdog

    Webdog Up to 91% remain undiagnosed

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    So much here, it's hard to stop laughing. Just when I thought I had heard it all, I stumbled across this comedy gem.

    These are some "suggestions" for managing Chronic Fatigue Syndrome:
    • Bungee jumping can help reduce symptoms
    • Screaming until hoarse increases tiredness
    • Avoid email and technology while also increasing usage of social media
    • Battling over what ice cream flavor to buy increases fatigue
    • Use color therapy to reduce fatigue
    • List one's accomplishments to reduce fatigue
    • Use mint aromas to increase energy
    "Managing Chronic Fatigue Syndrome, in conclusion, is possible. Knowledge of its signs and a few savvy suggestions will help greatly."

    http://www.lifeadvancer.com/chronic-fatigue-syndrome

    :depressed::depressed::bang-head:
     
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  2. A.B.

    A.B. Senior Member

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    I have the suspicion that this is generated by some grammatically clever but otherwise dumb algorithm that just learns what other people have written about CFS and related terms and then constructs vaguely similar sentences.

    How else do you explain sentences like this?

     
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  3. trishrhymes

    trishrhymes Senior Member

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    Oh dear. The writer clearly has no idea what CFS is. Seems to think it's anything that makes you tired.

    Sort of hilarious but it's a bit of a hollow laugh because some poor souls might actually believe it. Even more damaging probably is friends and family of ME/CFS sufferers believing it and giving advice based on this nonsense.

    A perfect example of the immense damage done by the name Chronic Fatigue Syndrome.

    Or maybe I've just had a complete sense of humour failure, and it's all a big joke????
     
  4. Webdog

    Webdog Up to 91% remain undiagnosed

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    [​IMG]

    :rolleyes:
     
  5. Snowdrop

    Snowdrop Rebel without a biscuit

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  6. mfairma

    mfairma Senior Member

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    Well, this all just made me chuckle. Thanks for posting. So absurd I can't even fathom being irritated.
     
  7. RogerBlack

    RogerBlack Senior Member

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  8. Jan

    Jan Senior Member

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    Can we get a bungee jump on the NHS? I'd rather do that than CBT, I might need a nappy though :rofl:
     
    Last edited: Mar 23, 2017
  9. barbc56

    barbc56 Senior Member

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    Don't you just hate It when that happens? :rofl:
     
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  10. Snow Leopard

    Snow Leopard Hibernating

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    Turing test fail.
     
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  11. Revel

    Revel Senior Member

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    "Our Promise
    We try to publish well-researched and valid information and we promise that most of our content is positive and helpful."

    Seriously?

    How sweet, they "try" - and was that a "pinky promise" or a real one? :rofl:
     
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  12. Forbin

    Forbin Senior Member

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    Hmmm. This "blog" seems to have changed over time. Many of the items quoted above no longer appear there. Rather than editing, I have a feeling that the blog is modifying itself in real time. It does seem like it's being crafted by a version of IBM's "Watson." Also, if you click on the author, currently "Michelle L.", you are taken to an "our team" page where "Michelle L." is oddly absent. Instead, one is presented with the photos of several other people only identified by their first name and last initial. One could be forgiven for imagining that this page is artificially generated as well.
     
    Last edited: Mar 24, 2017
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  13. RogerBlack

    RogerBlack Senior Member

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    I suspect rather than autogenerated, paid for on platforms where the author does this sort of thing for $2, and their credentials are not verified.

    Which, on balance, is about par for much CFS research.
     
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  14. hellytheelephant

    hellytheelephant Senior Member

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    Sadly they had their fingers crossed behind their backs- so it doesn't count!
     
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  15. hellytheelephant

    hellytheelephant Senior Member

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    'Most importantly, patients must keep active. They should also seek information about the condition.'


    This HAS to be a wind up!!!!! I have commented on their page.
     
    Last edited: Mar 24, 2017
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  16. Snowdrop

    Snowdrop Rebel without a biscuit

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    The content does seem to run between bizarre and gaslighting. Whatever is going on here---reality is very much not in the building.
     
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  17. Solstice

    Solstice Senior Member

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    Maybe not give it anymore traffic, lest it get's up in google and less knowledgeable people get to reading it.
     
  18. hellytheelephant

    hellytheelephant Senior Member

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    Good point!
     
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  19. Webdog

    Webdog Up to 91% remain undiagnosed

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    I used their "Contact Me" link, noting that CFS is not a fatigue disease, that exercise can be harmful, and pointing them to the IOM report. I got back this reply from Lucas (lifeadvancer@gmail.com):
    I've invited Michelle to engage with us as she rewrites her blog post. That would be a nice twist.
     
  20. Webdog

    Webdog Up to 91% remain undiagnosed

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    Michelle never contacted me, only Lucas. Perhaps some of you are correct and it was an algorithm that wrote the original article.

    You'll notice there's been a rewrite, and it's not as awful. It does devolve as you read on. I've certainly read worse and the links at the end are good, but that's about the only praise I can give.

    I'm not sure why the public comments got erased, but suspect it has more to do with tech incompetence on their end than any attempt to avoid criticism.

    http://www.lifeadvancer.com/chronic-fatigue-syndrome
     

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