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Biofilm-forming protozoan

Discussion in 'Latest ME/CFS Research' started by Seattle Sue, Sep 10, 2012.

  1. I received this recently from a friend of mine.
    I'm wondering if anyone has heard of this and has any thoughts on it.




    Dr. Fry is doing some exciting work on a new biofilm-forming protozoan previously referred to as FL1953 and only recently renamed to Protomyxozoa rheumatica, a highly immunosuppressive microorganism. He refers to it as the premier pathogen.

    I recently had the opportunity to attend a lecture by Dr. Stephen Fry MD as part of Dr. Klinghardt's recent "Beyond Lyme" conference. I'm still working on my notes from that event and will post them soon. In the meantime, I just listened to a radio interview from Dr. Fry which can be found here.

    Some of the key points from the the radio interview:

    FL1953 is a new, unique protozoan organism that is found in people with CFS, Fibromyalgia, Multiple Sclerosis, ALS, and Rheumatoid Arthritis.
    People with Morgellon's also have evidence of the organism. In Morgellon's, Dr. Fry talked about this new protozoan possibly suppressing the immune system such that a fungal/mycelial condition then develops leading to the symptoms of Morgellons.
    Dr. Fry discussed the use of Tetracyclines, Zithromax, Plaquenil and other options, but more interesting were his other recommendations. One of the future projects his lab is working on is to complete sensitivity testing of various therapies for this new protozoan.
    He shared that diet is very important. The protozoan loves lipids (fats) and that lipid restriction via low-fat diets has been a very powerful tool. Lipids and fatty acids also play a role in the formation of biofilms which seem to collapse with lipid restriction.
    He discussed the benefits of a whole food, plant-based diet full of bioflavanoids; which themselves act as an antibiotic.
    He suggested that many people with chronic illness may struggle with wheat not due to the gluten content but due to the high arginine which the FL1953 protozoan thrives on.

    Many of these concepts are still emerging, but it appears that Dr. Fry's protozoan may be an important piece of the puzzle. I recently had blood drawn to test for this organism and biofilms with Dr. Fry's lab and will post a blog about my results on my site when they are available. For information on tests available from Fry Labs, visit their web site.

    http://www.betterhealthguy.com/joomla/blog/243-dr-stephen-fry-on-fl1953

    Radio show on blogtalk radio
    http://www.blogtalkradio.com/pamcra...ructure?sms_ss=email&at_xt=4dd6203db4259bdf,0
     
    Little Bluestem, merylg and Wayne like this.
  2. CAcfs

    CAcfs Senior Member

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    I used to use this one Lyme site a lot, and people were constantly talking about this Fry bug there. From what I recall (and I could be wrong), mostly everyone who gets tested tests positive for it??? Personally, I would not bother with the testing, but that is my two cents. I am not saying it won't turn out to be important work, but who knows for now.

    I do believe that I personally have either babesia or some other strange protozoan, because I frequently test positive for babesia. Sometimes I question if it is something else that is cross-reacting? So I am all for more research, but who knows if Fry's bug is something special or not.
     
  3. ukxmrv

    ukxmrv Senior Member

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    If you do a search you should find some of his patients on this forum. There have been threads already and mentions in other threads.
     
  4. Marlène

    Marlène Senior Member

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    Edegem, Belgium
  5. jen1177

    jen1177

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    Thank you, Seattle Sue, for posting about this. I live in AZ and a few days ago I went to see Dr. Fry. He is very nice and so is the staff. He specializes in chronic diseases and is a LLMD (Lyme literate MD). I am currently waiting on results of bloodtests which will take a few weeks. No idea if I will test positive for Lyme or protomyxzoa or Babesia or something else...or test negative for everything. The reason I finally went to see him was because of another bloodtest called CD57 which my results showed probable Lyme or other chronic infection, or chronic autoimmune disease (which may actually be caused by chronic infections). My results were a 42 where normal is 60 - 360 (?) -- don't quote me on the upper limit...not sure.
    I wanted to add the following link to an interview with Dr. Fry which explains in detail all the research he has done and why he believes protomyxzoa rheumatica may be the cause of CFS as well as other chronic progressive diseases.
    http://www.alsforums.com/forum/gene...bromyalgia/18062-protomyxozoa-rheumatica.html
    I really hope he is right and that this doesn't turn out to be another XMRV-like fiasco.
     
  6. jen1177

    jen1177

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    Wanted to add that I believe the correct spelling is "protomyxzoa" with only a total of 3 "o"s. For people who want to do more online searches or searches on Phoenix Rising.
     

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