Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS ...
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Big study coming?

Discussion in 'General ME/CFS Discussion' started by msf, Feb 3, 2016.

  1. msf

    msf Senior Member

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    Hasn´t been one for a while, are the researchers still on their Christmas breaks? Who do you think will publish next, and what do you expect them to publish?
     
    Bob likes this.
  2. *GG*

    *GG* Moderator

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    Christmas breaks? What is that? You think they get a month of or something? This is not some student in College. I doubt they take much time off at all!

    GG
     
  3. msf

    msf Senior Member

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    That was a joke. I was just pointing out that there hasn´t been a big study for a while.
     
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  4. Bob

    Bob

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    I've been wondering that as well. As you say, we haven't had any major research news events for a while. There are a number of big projects in the pipeline but I'm not aware of any dates.
     
  5. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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    Been noticing the same.. There is a exiting one from Haukeland where the finding is elevated bAFF, think it`s due in a couple of months.
     
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  6. msf

    msf Senior Member

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    Where did you hear that, and what is bAFF?
     
  7. msf

    msf Senior Member

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    Found it! Interesting that it activates NF-kB.
     
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  8. Scarecrow

    Scarecrow Revolting Peasant

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    Cort Johnson reported the following teaser in December:
    Full article here:
    http://simmaronresearch.com/2015/12...ears-to-solve-chronic-fatigue-syndrome-mecfs/

    Discussed here:
    http://forums.phoenixrising.me/index.php?threads/preliminary-news-from-lipkin-co.42026/#post-679563
     
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  9. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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    From a ME conference with Mella :)
     
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  10. msf

    msf Senior Member

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    Yeah, and there was the infectious study teaser earlier in the year - what I want to know is, when are they going to publish them? Seems like everyone is in the process of writing them up.
     
  11. Mark

    Mark Former CEO

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    Indeed, in which case there seem to be a few due some time in the next few months. Just in time for IiME I hope...:)
     
  12. Snowdrop

    Snowdrop Rebel without a biscuit

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    I received an email in early November from Sonya Marshall Gradisnik saying they would be presenting some research findings at the Invest in ME conference in London this year. She reiterated their commitment to finding the pathology mechanism for ME.
    Although I do not know what they will be presenting at London.
     
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  13. Esther12

    Esther12 Senior Member

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    GETSET due. SMILE.

    Wonder if they'll be getting a more careful peer review now PACE concerns have gone a bit more mainstream.
     
  14. msf

    msf Senior Member

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    I did not ask when the next ´big waste of time study´ was coming out, Esther.
     
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  15. Esther12

    Esther12 Senior Member

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    Your thread title actually got my heart pumping... I was expecting inside information on imminent SMC spin and another 'big' study being used to cause big harm.
     
  16. taniaaust1

    taniaaust1 Senior Member

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    I'm still waiting for an ME/CFS study which will come from Sth Australia to be published. Its a followup one to try to confirm previous findings on how our white brain matter deteriorates at a faster rate then it should and the longer we are ill the more deteriorated it is. I'm sure they must by now almost have it complete or actually they should of completed it (except the writing up of it all).. I think its been about a year since they put me through testing for the study.

    but who knows.. last time they did a study they took years to publish it.
     
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