Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
Discuss the article on the Forums.

Big study coming?

Discussion in 'General ME/CFS Discussion' started by msf, Feb 3, 2016.

  1. msf

    msf Senior Member

    Messages:
    3,192
    Likes:
    4,475
    Hasn´t been one for a while, are the researchers still on their Christmas breaks? Who do you think will publish next, and what do you expect them to publish?
     
    Bob likes this.
  2. *GG*

    *GG* Senior Member

    Messages:
    6,148
    Likes:
    4,741
    Concord, NH
    Christmas breaks? What is that? You think they get a month of or something? This is not some student in College. I doubt they take much time off at all!

    GG
     
  3. msf

    msf Senior Member

    Messages:
    3,192
    Likes:
    4,475
    That was a joke. I was just pointing out that there hasn´t been a big study for a while.
     
    Bob likes this.
  4. Bob

    Bob

    Messages:
    9,844
    Likes:
    33,946
    England (south coast)
    I've been wondering that as well. As you say, we haven't had any major research news events for a while. There are a number of big projects in the pipeline but I'm not aware of any dates.
     
  5. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

    Messages:
    1,215
    Likes:
    4,532
    Been noticing the same.. There is a exiting one from Haukeland where the finding is elevated bAFF, think it`s due in a couple of months.
     
    mango, NK17 and Bob like this.
  6. msf

    msf Senior Member

    Messages:
    3,192
    Likes:
    4,475
    Where did you hear that, and what is bAFF?
     
  7. msf

    msf Senior Member

    Messages:
    3,192
    Likes:
    4,475
    Found it! Interesting that it activates NF-kB.
     
    Marky90 likes this.
  8. Scarecrow

    Scarecrow Revolting Peasant

    Messages:
    1,901
    Likes:
    5,379
    Scotland
    Cort Johnson reported the following teaser in December:
    Full article here:
    http://simmaronresearch.com/2015/12...ears-to-solve-chronic-fatigue-syndrome-mecfs/

    Discussed here:
    http://forums.phoenixrising.me/index.php?threads/preliminary-news-from-lipkin-co.42026/#post-679563
     
    NK17, Rick Sanchez, Bob and 1 other person like this.
  9. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

    Messages:
    1,215
    Likes:
    4,532
    From a ME conference with Mella :)
     
    mango and NK17 like this.
  10. msf

    msf Senior Member

    Messages:
    3,192
    Likes:
    4,475
    Yeah, and there was the infectious study teaser earlier in the year - what I want to know is, when are they going to publish them? Seems like everyone is in the process of writing them up.
     
  11. Mark

    Mark Former CEO

    Messages:
    5,224
    Likes:
    6,197
    Sofa, UK
    Indeed, in which case there seem to be a few due some time in the next few months. Just in time for IiME I hope...:)
     
  12. Snowdrop

    Snowdrop Rebel without a biscuit

    Messages:
    2,896
    Likes:
    10,090
    I received an email in early November from Sonya Marshall Gradisnik saying they would be presenting some research findings at the Invest in ME conference in London this year. She reiterated their commitment to finding the pathology mechanism for ME.
    Although I do not know what they will be presenting at London.
     
    Kati likes this.
  13. Esther12

    Esther12 Senior Member

    Messages:
    8,449
    Likes:
    28,522
    GETSET due. SMILE.

    Wonder if they'll be getting a more careful peer review now PACE concerns have gone a bit more mainstream.
     
  14. msf

    msf Senior Member

    Messages:
    3,192
    Likes:
    4,475
    I did not ask when the next ´big waste of time study´ was coming out, Esther.
     
    GreyOwl, Kati, Bob and 2 others like this.
  15. Esther12

    Esther12 Senior Member

    Messages:
    8,449
    Likes:
    28,522
    Your thread title actually got my heart pumping... I was expecting inside information on imminent SMC spin and another 'big' study being used to cause big harm.
     
  16. taniaaust1

    taniaaust1 Senior Member

    Messages:
    11,904
    Likes:
    12,733
    Sth Australia
    I'm still waiting for an ME/CFS study which will come from Sth Australia to be published. Its a followup one to try to confirm previous findings on how our white brain matter deteriorates at a faster rate then it should and the longer we are ill the more deteriorated it is. I'm sure they must by now almost have it complete or actually they should of completed it (except the writing up of it all).. I think its been about a year since they put me through testing for the study.

    but who knows.. last time they did a study they took years to publish it.
     
    BurnA, Bob and Marky90 like this.

See more popular forum discussions.

Share This Page