Discussion in 'Action Alerts and Advocacy' started by justinreilly, Apr 10, 2011.
What's the best ME Org in the USA?
Have I forgotten anyone? Any state orgs that should go up there?
yes, you are missing the ME Society of America http://cfids-cab.org/MESA/
and the National Alliance for Myalgic Encephalomyelitis http://www.name-us.org/
(I'm not sure either of them do anything besides the websites, however)
yes, I'll put those in. Also RESCIND I think is still active.
How do you edit the poll? The poll part of the FAQ doesn't explain how to do it.
IACFS/ME and OFFER could also be added.
I've PM'd a mod to see if there's a way to add more choices to the poll.
Well, you're actually also missing the organization that hosts this site - Phoenix Rising.
There are a number of state organizations, such as the Massachusetts CFIDS Asso. http://www.masscfids.org/, the New Jersey CFS Asso. http://www.njcfsa.org/, Wisconsin ME/CFS Asso. http://www.wicfs-me.org/. I'm sure there are others I don't know about.
With all due respect, this is like comparing apples, oranges and kumkwats.
There are orgs on the list that are doing well serving the community within their own niche, but their purposes are very different and cannot be measured with the same yardstick. For example, if we add PR to the list, well of course we all know it's the best forum on the net, and if it was up against other forums, there would be no contest How would we chose for example between connecting with each other on the web, the groundbreaking work of the WPI or the awesome media campaigns by MCWPA?
Many are contributing in their own unique and valuable way - I'd rather have fruit salad, can that be a choice? :victory:
Polls apparently can't be edited. I think we've got the major orgs up in this one. I would consider PR major, but, as SpecialK82 said it may be like comparing apples to oranges. I did edit a similar poll on mecfsforums.com to include all the suggestions. So far the added orgs haven't gotten any votes.
If someone wants to vote on one of the unincluded orgs, pls vote on mecfsforums.com and/or start a new poll here with all the choices. Want everyone to be heard. Thks.
You can also try a Google Site Search
Separate names with a comma.