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Best ME ("CFS") Org- USA

Discussion in 'Action Alerts and Advocacy' started by justinreilly, Apr 10, 2011.

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What's the Best ME ("CFS") Org in the USA?

  1. Whittemore Peterson Institute

    83.3%
  2. CFIDS Association of America

    11.1%
  3. PANDORA

    5.6%
  4. MCWPA

    0 vote(s)
    0.0%
  5. Coalition 4 ME/CFS

    0 vote(s)
    0.0%
  6. National CFIDS Foundation

    0 vote(s)
    0.0%
  7. International ME Association

    0 vote(s)
    0.0%
  1. justinreilly

    justinreilly Senior Member

    Messages:
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    Likes:
    1,214
    NYC (& RI)
    What's the best ME Org in the USA?

    Have I forgotten anyone? Any state orgs that should go up there?
     
  2. WillowJ

    WillowJ คภภเє ɠรค๓թєl

    Messages:
    3,763
    Likes:
    4,843
    WA, USA
  3. justinreilly

    justinreilly Senior Member

    Messages:
    2,496
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    1,214
    NYC (& RI)
    yes, I'll put those in. Also RESCIND I think is still active.

    How do you edit the poll? The poll part of the FAQ doesn't explain how to do it.
     
  4. eric_s

    eric_s Senior Member

    Messages:
    1,925
    Likes:
    75
    Switzerland/Spain (Valencia)
    IACFS/ME and OFFER could also be added.
     
  5. justinreilly

    justinreilly Senior Member

    Messages:
    2,496
    Likes:
    1,214
    NYC (& RI)
    I've PM'd a mod to see if there's a way to add more choices to the poll.
     
  6. Cort

    Cort Phoenix Rising Founder

    Well, you're actually also missing the organization that hosts this site - Phoenix Rising. :)
     
  7. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    274
    Long Beach, CA
  8. SpecialK82

    SpecialK82 Ohio, USA

    Messages:
    992
    Likes:
    819
    Ohio, USA
    With all due respect, this is like comparing apples, oranges and kumkwats.

    There are orgs on the list that are doing well serving the community within their own niche, but their purposes are very different and cannot be measured with the same yardstick. For example, if we add PR to the list, well of course we all know it's the best forum on the net, and if it was up against other forums, there would be no contest :D How would we chose for example between connecting with each other on the web, the groundbreaking work of the WPI or the awesome media campaigns by MCWPA?

    Many are contributing in their own unique and valuable way - I'd rather have fruit salad, can that be a choice? :victory:
     
  9. justinreilly

    justinreilly Senior Member

    Messages:
    2,496
    Likes:
    1,214
    NYC (& RI)
    Polls apparently can't be edited. I think we've got the major orgs up in this one. I would consider PR major, but, as SpecialK82 said it may be like comparing apples to oranges. I did edit a similar poll on mecfsforums.com to include all the suggestions. So far the added orgs haven't gotten any votes.

    http://www.mecfsforums.com/index.php/topic,6742.0.html

    If someone wants to vote on one of the unincluded orgs, pls vote on mecfsforums.com and/or start a new poll here with all the choices. Want everyone to be heard. Thks.
     

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