1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Hyperparathyroidism: An Often Overlooked Differential Diagnosis to ME/CFS
Andrew Gladman puts hyperparathyroidism under the microscope, exploring what the disease is, how it can mimic ME/CFS in presentation and how it is treated.
Discuss the article on the Forums.
  1. AFCFS

    AFCFS Senior Member

    Messages:
    312
    Likes:
    243
    NC
    I am now rethinking this. This article seems convincing that Vitamin C is fine in mega dose: Could Vitamin C be Dangerous? (summary/conclusion shown here):
    Just a side note - same article - thought it was amazing that: If your dog cut its paw and developed an infection, it would manufacture around 10,000 mg of vitamin C per day to fight the infection. Fido can, you can’t.
  2. arx

    arx Senior Member

    Messages:
    525
    Likes:
    134
  3. AFCFS

    AFCFS Senior Member

    Messages:
    312
    Likes:
    243
    NC
    I think the survey results are quasi-interesting. I wonder what would happen if Klonopin was replaced by opium, which used to be the cure-all found in tonics (and opium dens) in years past. If it works it works; and if given a potentially terminal disease, aside from living life itself, why not look for comfort. I am six days off the Klonopin, after a 66 day slow taper, after many years of use. I was tired of it, and did not want to carry an attachment to it, perhaps in similar respects to Mrs. Dubose, the old morphine addict who removed herself from the clutches of addiction, in To Kill A Mockingbird:

    “I wanted you to see what real courage is, instead of getting the idea that courage is a man with a gun in his hand. It's when you know you're licked before you begin but you begin anyway and you see it through no matter what. You rarely win, but sometimes you do. Mrs. Dubose won, all ninety-eight pounds of her. According to her views, she died beholden to nothing and nobody. She was the bravest person I ever knew.”

    All I am saying is it may be prudent for one to think twice, before reading a survey and thinking a new med may be of interest. When I initially went on it for terrible anxiety and need of sleep, the doctor could have offered me cyanide to cure the pain and get some shuteye, and not knowing better, likely would have taken it. Klonopin just takes longer to work. Coming off of it, I have found magnesium to work well, though it may take a bit longer. For sleep, I have also used melatonin, l-tryptophan, and GABA.

    Aside from good warning as to why one should consider being on it, it is also good warning for those going off it and having problems and researching the net high and low for supportive rationale as to why they may "need" it after all. That is for each to decide, but may want to consider taper strategy first.
  4. MishMash

    MishMash *****

    Messages:
    446
    Likes:
    477
    Georgia
    What should be the criterion? : I say, if you have ever seriously considered suicide as a result of your ME/CFS pain and symptoms, then you should probably go ahead and try narcotic medications. If you feel like each passing day is just another burden to be born, with no hope of peace or sleep. Or you still have daily work, obligations, and you feel sicker and sicker each morning. I think these are the kind of sentiments doctors hear in their offices everyday, which is why they continue to dispense these drugs despite the controversy. In the end, there are no prizes given at the pearly gates for clean living. We all shuffle off this mortal coil in the end.
    AFCFS likes this.
  5. AFCFS

    AFCFS Senior Member

    Messages:
    312
    Likes:
    243
    NC
    True, but what if one takes to a more Buddhist persuasion and, failing to gain Nirvana in this life, ends up doping oneself with bad karma (in that case, in view of present conditions, we might of all have had generated some really suck *ss karma in lives past, seeding that wheel of suffering forward). Not pretending to know the intricacies of karma, I suppose one might have to weigh the volition of being drug-infused with the extrapolated and contrived notion of ending up in a bell tower after becoming indigent and to find the pain meds no longer available. Suppose the same situation could be used as a case study in Christianity as well as a host of philosophical pursuits.

See more popular forum discussions.

Share This Page