Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Bedroom Video Campaign: "Dear Sec Sebelius, Dear Dir. Collins"

Discussion in 'Action Alerts and Advocacy' started by Frickly, Sep 7, 2010.

  1. Frickly

    Frickly Senior Member

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    === Please post widely ===

    In celebration of the 1st International XMRV Conference, here is the link to "Dear Secretary Sebelius, Dear Director Collins" bedroom video. http://www.youtube.com/watch?v=8t1Xqp1LDxM

    I hope this starts a video campaign where people with ME/CFS make their own videos from their own beds, post them on youtube and email them to HHS Secretary Sebelius and NIH Director Collins.
     
  2. muffin

    muffin Senior Member

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    Will do. Great Video!

    Everyone should copy and post all over including Facebook! Thanks!
     
  3. BEG

    BEG Senior Member

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    That was great!! Posting . . . .
     
  4. Berthe

    Berthe Senior Member

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    This was great! I'd love to copy it from my bed/couch in Dutch. I Unfortenately don't have a webcam. Not yet!
    Yesterday I decided to start a blog in Dutch, to give the disease with the belittling name CFS (in Belgium also known as CVS and Holland as ME) a face. Next week I hope to be online.

    Is Frickly actually the author of the youtube clip?

    Love,
    Berthe

    p.s. I will post it on the MECVS forum in Holland/Belgium.
     
  5. Frickly

    Frickly Senior Member

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    Hi, Berthe

    I am not the creator of this video but think it is a great idea. Hopefully, we will begin to see many more like this.
     
  6. citybug

    citybug Senior Member

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    Great video! Team Rivka. Can regular cameras in movie mode be posted on youtube? I know it's not the right type for facebook.
     

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