Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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In my case I was bitten dozens of times, or hundreds, when I lived in the woods in southern Oklahoma. That was 20 years before the onset of ME symptoms. But I also had symptoms developing within a year or two of the bites. Stiff joints, no sweating, some rashes, skin problems, etc.I could still have Lyme after all these years?
He is publishing a lot. Pubmed lists 98 citations under his name and you can also search for him on Google Scholar. He also has a lot of papers coming out in the next year or so. But he is primarily a clinician, not a researcher, and he's definitely one of the best ME clinicians in the world.I often read that dr de Meileir is not publishing...why?
There are different LTT tests. The one used by Armin labs is the LTT-Elispot. They've published their data showing that it is accurate.The LTT tests are scientifically controversial.
I have taken antivirals and antibiotics. Those have helped a lot.
I went on a significant elimination diet. That has helped tremendously. It seems that I have trouble with the top food allergens: wheat, dairy, gluten, nuts, seeds, eggs, corn....and the list goes on.